Latest news

At the start of November, we welcomed Darren Shilhan, our new Lead IT and Data Performance Analyst, to the eUROGEN office team.  Darren has written a beautiful introduction to...

Serena Bartezzati (eUROGEN EPAG representative) attended the conference in Brussels from 21-22 November and has kindly provided us with a patient’s perspective both on the meeting and on the...

Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference Networks Conference. The well-attended and lively event featured two full...

The International Children’s Continence Society (ICCS) 2018 Annual Meeting was held in Rome from 26-29 September and covered almost all areas relevant to the pediatric urinary tract and its...

Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next...

The results of the INNOVCare Project (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) were announced at the final project conference in Brussels on 5 September, to 80 participants...

From 13-14 September, the ePAG Steering Committee met in Brussels, with Dalia Aminoff and Serena Bartezzati representing eUROGEN. Birute Tumiene, a geneticist from Vilnius University Hospital Santaros Klinikos, and...

New call for proposals A new call for ERNs to apply to the Connecting European Facilities Fund (CEF) was published on 28 June 2018, with a submission deadline of...

Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients and families affected by all types of genetic conditions) held...