Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients and families affected by all types of genetic conditions) held... Prof Wout Feitz (WS1 Lead) (NL) and Michelle Battye (Manager) (UK) represented eUROGEN at the ERN CG meeting on 25 June 2018 in Brussels. These meetings are held three... We held our 2nd Annual Strategic Board meeting in Noordwijk from 11-12 June 2018, with 43 attendees representing our Coordinating Team, Operational Board, Workstreams, Health Care Providers (HCPs) and... The European Reference Network (ERN) eUROGEN is already the most proactive of the 24 ERNs approved and funded by the European Commission (EC), announced Mrs. Michelle Battye (GB) in... Prof Chris Chapple introduces EU Commissioner Vytenis Andriukaitis at the EAU18 opening ceremony, after a dynamic performance by the Copenhagen Drummers. We also get a behind the scenes look... A major international survey has found that around a quarter of patients are not receiving the recommended treatment for cancer of the penis. It also found that these patients... As Coordinators of the 24 European Reference Networks (ERNs), we stand together and united with our 900 strong members (healthcare providers) and the patient community, in the fight against... After an extensive assessment, we are pleased to announce that eUROGEN, the European Reference Network (ERN) for rare and complex urogenital diseases and conditions, was officially launched during the 3rd conference... On Rare Disease Day, the European Commission announced the start of the newly established European Reference Networks (ERNs). ERNs are unique and innovative cross-border cooperation platforms between specialists for...Latest News
Genetic Alliance UK Event, Houses of Parliament, London
ERN Coordinators Group (ERN CG) Meeting, Brussels
2nd Annual eUROGEN Strategic Board Meeting, Noordwijk
eUROGEN: Improving lives for patients with rare diseases
EU Commissioner Vytenis Andriukaitis on eUROGEN
One quarter of penis cancer sufferers don’t get recommended treatment – halving the survival rate
Position Statement from the European Reference Networks (ERNs) Network Coordinators
eUROGEN is approved by the European Commission
European Reference Networks: 900 medical teams to connect across Europe for the benefit of patients