Equitable access to the best care in Europe for patients with rare uro-recto- genital diseases and complex conditions

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Latest Updates: We have recently added patient journeys for Bladder Exstrophy, Ano-Rectal Malformations, and Interstitial Cystitis

For patients

30 million Europeans are affected by 6,000 – 8,000 rare diseases.

Our network

Specialist healthcare providers across the EU together providing highly specialised treatment.

Our services

eUROGEN ensures continuity of patient care from childhood throughout the lifespan

For clinicians

Direct access to the Collaborative Platform and the Clinical Patient Management System (CPMS). For members only.

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eUROGEN Workstreams

1

Rare congenital
Uro-recto-genital anomalies

2

Functional urogenital conditions requiring highly specialised surgery

3

Rare urogenital tumours

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