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For who

30 million Europeans are affected by 6.000 – 8.000 rare diseases. Who is eligible for special treatment nearby?

Our network

Specialist healthcare providers across the EU together providing highly specialised treatment.

Our services

eUROGEN ensures continuity of patient care from childhood throughout the lifespan

For Clinicians

Direct access to the Collaborative Platform and the Clinical Patient Management System (CPMS). For members only.

How do ERNs work?

eUROGEN Workstreams

Rare congenital
Uro-recto-genital anomalies

Functional urogenital conditions requiring highly specialised surgery

Rare urogenital tumours

Latest news

eUROGEN Webinar: Paediatric Colorectal Surgery – An introduction to eUROGEN ARM Webinars
On Tuesday the 21st July at 18:00 CEST, we will be continuing our series of eUROGEN webinars. This webinar...
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ERN Guidelines Training – First Announcement
The ERN Guidelines Consortium training programme for ERN Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) is planned...
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EMA Waives Fees to Encourage Orphan Medicine Development
To further encourage the development of treatments for rare diseases, the European Medicines Agency (EMA) will waive all fees for...
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