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Equitable access to the best care in Europe for patients with rare uro-recto- genital diseases and complex conditions

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Latest Updates…

We have recently added patient journeys for Bladder Exstrophy, Ano-Rectal Malformations, and Interstitial Cystitis

For patients

30 million Europeans are affected by 6,000 – 8,000 rare diseases.

Our network

Specialist healthcare providers across the EU together providing highly specialised treatment.

Our services

eUROGEN ensures continuity of patient care from childhood throughout the lifespan

For clinicians

Direct access to the Collaborative Platform and the Clinical Patient Management System (CPMS). For members only.

How do ERNs work?

For subtitled and non-English versions, click here.

eUROGEN Workstreams

Rare congenital
Uro-recto-genital anomalies

Functional urogenital conditions requiring highly specialised surgery

Rare urogenital tumours

Latest news

eUROGEN Webinar: Posterior Urethral Valves – Treatment and follow-up from a pediatric urological perspective
On Tuesday 12th January at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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Training Programme in Intensive Care Skills
In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the...
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Brexit – UK clinicians Warn of No-Deal Consequences for Patients
In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have...
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