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Our Network

56 healthcare providers across the EU/EEA specialised in rare uro-recto-genital diseases and complex conditions.

For Patients

Resources and information to improve the lives of patients with uro-recto-genital conditions and their families.

For Clinicians

Offering expert advice on diagnosis and treatment, providing clinical guidelines, and collecting registry data.

Training & Eduation

Training urologists and surgeons and increasing skill levels through webinars, books, and courses.

Three Workstreams

1

Paediatrics: Rare Congenital Uro-Recto-Genital Anomalies

2

Adults: Functional Uro-Recto-Genital Conditions Requiring Highly Specialised Surgery

3

Oncology: Rare Uro-Recto-Genital Tumours

Latest News

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