Equitable access to the best care in Europe for patients with rare uro-recto- genital diseases and complex conditions

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For patients

30 million Europeans are affected by 6,000 – 8,000 rare diseases.

For clinicians

Direct access to the Collaborative Platform and the Clinical Patient Management System (CPMS). For members only.

Our network

Specialist healthcare providers across the EU together providing highly specialised treatment.

Our services

eUROGEN ensures continuity of patient care from childhood throughout the lifespan

Three Workstreams


Rare Congenital
Uro-Recto-Genital Anomalies


Functional Urogenital Conditions Requiring Highly Specialised Surgery


Rare Urogenital Tumours

How do ERNs work?

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