Our Network 56 healthcare providers across the EU/EEA specialised in rare uro-recto-genital diseases and complex conditions. For Patients Resources and information to improve the lives of patients with uro-recto-genital conditions and their families. For Clinicians Offering expert advice on diagnosis and treatment, providing clinical guidelines, and collecting registry data. Training & Eduation Training urologists and surgeons and increasing skill levels through webinars, books, and courses. Three Workstreams 1 Paediatrics: Rare Congenital Uro-Recto-Genital Anomalies 2 Adults: Functional Uro-Recto-Genital Conditions Requiring Highly Specialised Surgery 3 Oncology: Rare Uro-Recto-Genital Tumours Latest News ERN eUROGEN Project Review: Positive Assessment25 August 2026 0Cross-ERN Publication: Crisis Preparedness for Rare Disease Patients25 August 2026 0Transition Guidelines for Rare Uro-Recto-Genital Conditions29 July 2026 0ERN eUROGEN: Rare Barometer Mental Health Survey Results22 July 2026 0The Next EU Budget and Future ERN Funding22 July 2026 0ERN eUROGEN at the ESPU: Registry Growth & Research Connections25 June 2026 0ERN eUROGEN at the 1st UEMS Congress: Highlighting Rare Diseases25 June 2026 0Introducing VACTERL Visionaries: A New Support Website15 June 2026 0
56 healthcare providers across the EU/EEA specialised in rare uro-recto-genital diseases and complex conditions.
Resources and information to improve the lives of patients with uro-recto-genital conditions and their families.
Offering expert advice on diagnosis and treatment, providing clinical guidelines, and collecting registry data.
Training urologists and surgeons and increasing skill levels through webinars, books, and courses.