What we do

What We Do: The European Reference Networks & ERN eUROGEN

European Reference Networks (ERNs) are an exciting new form of cooperation at European level between healthcare providers with specialised expertise with the aim of improving care for patients with rare diseases or complex conditions.

eUROGEN is one of the 24 ERNs approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission. For more information about the ERNs and the EU health strategy, please click here.

eUROGEN aims to improve diagnosis, create more equitable access to high-quality treatment and care for patients with rare urogenital diseases and complex conditions needing highly specialised surgery.

Mission Statement

“eUROGEN will deliver quicker specialist evaluation and more equitable access to high quality diagnosis, treatment and care for patients with rare urogenital diseases and complex conditions who need highly specialised assessment and surgery.”

Our Vision

eUROGEN will train the next generation of surgeons to increase skill levels and improve outcomes. A priority will be transferring knowledge and training to the Member States with less expertise, thereby increasing the quality of surgical outcomes for patients across Europe and reducing costs. Educational, training and research strategies will be developed together with patients and patient representatives involved in the relevant disease areas.

Other Activities

Rare and complex urogenital conditions can require surgical correction, often during the neonatal period or in childhood. Individuals affected require life-long care pro­vided by multidisciplinary teams of experts who plan and perform surgery and provide post-operative physiotherapy and psychol­ogy support. eUROGEN will provide independently-eval­uated best practice guidelines and improve the sharing of outcomes. It will, for the first time, offer the capacity for tracking long-term outcomes for patients over a 15 to 20-year period.

The network will collect data and materials where they are lacking, develop new guide­lines, build evidence of best practice, iden­tify practice variation, develop education programmes and training, set the research agenda in collaboration with patient repre­sentatives, and share knowledge through par­ticipation in virtual multidisciplinary teams. By 2020, at least 50 new specialists for rare and complex urogenital diseases will have benefited from specific training and fellow­ship programmes developed by eUROGEN. Ultimately, the network seeks to advance innovation in medicine and improve diagnos­tics and treatment for patients.

Scope of the ERNs

To create equitable access for as many patients as possible in an efficient and cost-effective way we have divided our development activities into four categories: