The ERN Guidelines Consortium training programme for ERN Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) is planned to start by February 2021 and will be tailored to...

To further encourage the development of treatments for rare diseases, the European Medicines Agency (EMA) will waive all fees for scientific advice for academia developing orphan medicines. The academic sector...

by Serena Bartezzati, ePAG Representative Knowledge generation and dissemination is a key objective of the ERNs.  The Working Group (WG) on Knowledge Generation aims to create a common ERN...

ERN eUROGEN held their annual Strategic Board Meeting using virtual conferencing on 12 June 2020, despite the unprecedented global situation with the COVID-19 pandemic.  Over 50 network members attended,...

I am looking forward to starting as Coordinator of the ERN eUROGEN Registry. It will be a challenge to set this up and find a good balance between the...

I am very excited to start work with ERN eUROGEN and get familiar with the ERN and Clinical Patient Management System (CPMS) so I can be of help.  I...

As my job title suggests I am responsible for supporting and managing the aspects of ERN eUROGEN’s business which keep the network running. This covers administrative tasks including coordinating...

My primary role is to help our network clinicians get their difficult patient cases uploaded to the Clinical Patient Management System (CPMS) for discussion with other experts and also...

My main focus is on ensuring the network is active, working together as a team, and that we are delivering.  I help out with the Monitoring Working Group (eUROGEN...