14th April 2020
presented by Prof. Margit Fisch and Dr. Tim Ludwig from Universitätsklinikum Hamburg-Eppendorf. Registration link coming soon.
12th May 2020
Presented by Dr. Hans Langenhuijsen, urologist at Radboud university medical centre. Registration available from mid-April.
17-19 September 2019 – European Joint Programme for Rare Diseases (EJP RD) General Assembly, Gdansk, Poland
17-19 September 2019
European Joint Programme for Rare Diseases (EJP RD) General Assembly, Gdansk, Poland
15 October 2019
Meeting of the IT Advisory Group, Brussels
7 November 2019
Rare 2030 project kick-off event, Brussels