Past Webinars

Past Webinars

Our previous webinars are outlined below, with descriptions of their content and links to recordings:

Webinar 47: ERN eUROGEN summer update [GoToWebinar][Youtube]by Professor Wout Feitz, Dr. Loes van der Zanden and Drs. Loes Oomen  (29 June 2022)

This webinar provides an overview of the activity within the ERN eUROGEN network and an update of most recent developments. It covers, among others, the development of the ERN eUROGEN registry, new features of the clinical patient management system (CPMS) and the possibilities within the mobility program.

This webinar was presented at Wednesday 29 June by Professor Wout Feitz, Dr. Loes van der Zanden and Drs. Loes Oomen from Radboudumc in Nijmegen (29 June 2022)

Webinar 46: The extent and role of lymph node dissection for ACC [GoToWebinar][Youtube]by Dr. Hans Langenhuijsen (22 June 2022)

In this webinar the role of lymph node dissection for ACC and the relevant literature on this topic are highlighted. Whether it adds to oncological outcome and to what extent it should be performed and with which surgical approach are under continuous debate. The discussion will continue but may be reinforced by this educational webinar.

The webinar was presented on 22 June 2022 and is aimed at healthcare professionals.

Webinar 45: New Developments in Sphincter-Sparing Techniques for Anorectal Malformation (ARM) patients [GoToWebinar] [YouTube] by Oliver Muensterer, Marko Mesic, & Ivo de Blaauw (15 June 2022)

This webinar focuses on recent developments in sphincter-sparing techniques for ARM patients.

The discussion is led by Prof. Ivo de Blaauw, Radboudumc, Nijmegen (NL), our Expertise Area Coordinator for EA 1.7 Urorectal/Anorectal Malformations, and is followed by two presentations to support and stimulate the conversation.

Prof. Oliver Muensterer, Dr. von Hauner Children’s Hospital, Munich (DE) delivers the first of these, focusing on the development of endoscopic percutaneous anorectoplasties (ePARP), a minimally-invasive option for repairing amenable types of lesions. The second presentation is from Dr Marko Mesic, Children’s Hospital, Zagreb (HR), concentrating on sphincter-preserving anal transposition (SPAT), a perineal sphincter-sparing technique for perineal and vestibular fistulas.

The final part of the webinar is a discussion about sphincter-sparing techniques more generally and includes Prof. Francisca Velcek, State University of New York Hospitals (USA).

The webinar was presented on 15 June 2022 and is aimed at healthcare professionals and patient organisations.

 

Webinar 44: Penile Urethral Strictures: Contemporary Therapeutic Alternatives [GoToWebinar] [YouTube] by Felix Campos-Juanatey (8 June 2022)

The penile urethra presents specific features leading to higher complexity in terms of restoration. This webinar reviews the particularities of urethral strictures involving the penile area focusing on the main aetiologies (iatrogenic, lichen sclerosus and post-hypospadias repair) and their implications for surgical management. Current urethroplasty techniques (single or staged approaches and different augmentation or substitution strategies) are described in detail, exposing their predicted success rates. The webinar aims to assist those planning surgical management in better understanding the diagnostic workup, operative options, and outcomes.

This webinar was presented on 8 June 2022, by Dr Felix Campos-Juanatey, Marques de Valdecilla University Hospital, Santander (ES). It is aimed at both healthcare professionals and patient groups.

 

Webinar 43: Gonadal Surgery and Pathology in Differences in Sex Development (DSDs) [GoToWebinar] [YouTube] by Gilvydas Verkauskas, Darius Dasevicius, & Faruk Hadziselimovic  (1 June 2022)

Differences in sex development (DSDs) continue to be a management challenge for multidisciplinary teams (MDTs) within reference centres. The debatable questions (indications, timing, and evaluation of gonadal surgery and pathology) are addressed by different specialists for each category of DSD.

This webinar was presented on 1 June 2022 by Prof. Gilvydas Verkauskas, Faculty of Medicine, Vilnius University (LI), Drs. Darius Dasevicius, National Centre of Pathology, Vilnius (LI) and Prof. Faruk Hadziselimovic, Cryptorchidism Research Institute, Children’s Day Care Centre Liestal (CH). It is aimed at healthcare professionals and patient groups.

 

Webinar 42: The Genetics of Anorectal Malformation (ARM) [GoToWebinar] [YouTube] by Heiko Reutter & Carlo Marcelis (25 May 2022)

This webinar summarises the systematic investigations to elucidate the role of genetic factors in the expression of human anorectal malformation (ARM).

This webinar was presented on 25 May 2022, by Dr Heiko Reutter, Friedrich-Alexander University Nurnberg-Erlangen (DE) and Dr Carlo Marcelis, Radboudumc, Nijmegen, (NL).

 

Webinar 41: Laparoscopy for the Construction of Continent Catheterisable Channels [GoToWebinar] [YouTube] by Romy Gander (18 May 2022)

Laparoscopic construction of continent catheterisable channels is a relatively new technique and still challenging even for the most experienced surgeons because it requires advanced laparoscopic experience and surgical skill. In this presentation, the technical details of the procedure,  experience, and the current existent literature on the topic are discussed as well as the complications related to the procedure and its management.

This webinar was presented on 18 May 2022, by Dr Romy Gander, a paediatric surgeon from Vall d´Hebron University Hospital in Barcelona, and it was supported by the European Society for Paediatric Urology (ESPU). It is aimed at healthcare professionals.

 

Webinar 40: Male and Female Sphincter Implants with Technical Aspects [GoToWebinar] [YouTube] by Frank Van der Aa (11 May 2022)

This webinar outlines current indications, technical aspects and results of artificial urinary sphincter implantation in male and female patients. Male stress urinary incontinence (SUI) is primarily iatrogenic after radical prostatectomy and the sphincter is implanted at the bulbar urethra through open surgery. In female patients, an artificial urinary sphincter implant is reserved for severe SUI in the fixed “non-hypermobile” urethra and is implanted through the abdominal route. Currently, the robotic approach seems the give advantages over the classical open approach. Technical aspects with video fragments are shown and commented on. Results (efficacy and safety) are also discussed.

This webinar was presented on 11 May 2022 by Prof. Frank Van der Aa, a specialist in female & functional urology and reconstructive urology, University Hospital Leuven (BE), the Education Lead for our workstream on functional urology (WS2). It is aimed at healthcare professionals.

 

Webinar 39: Post-Prostatectomy Urinary Incontinence: Surgical Management of Complex Cases  [GoToWebinar] [YouTube] by Emilio Sacco, Christian Gozzi, Alessandro Giammò, & Roberto Olianas (20 April 2022)

This webinar comprises three presentations that focus mainly on surgical management of complex, “non-ideal” male patients with postprostatectomy urinary incontinence because, in this clinical scenario, management requires the highest surgical expertise.

The webinar was presented on 20 April 2022 and was introduced and chaired by Prof. Emilio Sacco, Agostino Gemelli Academic Hospital Foundation, Rome (IT). The presenters were Dr. Christian Gozzi, Marienklinik in Bolzan (IT), Dr. Alessandro Giammò, Department of Neuro-Urology, AOU Città della Salute e della Scienza di Torino (IT) (our Vice-Expertise Area Coordinator for EA 2.5 Interstitial cystitis), and Dr. Roberto Olianas, Department of Urology, Lueneburg Hospital (DE). The webinar is aimed at healthcare professionals.

 

Webinar 38: Surgical Management of Total Colonic Aganglionosis (TCA)  [GoToWebinar] [YouTube] by Mikko Pakarinen & Tomas Wester (16 March 2022)

Total colonic aganglionosis (TCA) is a potentially life-threatening condition with significant morbidity. Surgical reconstruction aims to create bowel continuity with preserved faecal continence. There are limited data showing long-term outcomes and no consensus regarding reporting these. A small sample size hampers most studies.

This webinar focuses on the management of TCA and the decision-making process. Management should focus on providing acceptable bowel function, quality of life and growth, and preventing enterocolitis. Dedicated multidisciplinary teams (MDTs) should follow children with TCA, and adolescents should be offered transition to adult care.

This webinar was presented on 16 March 2022 by Prof Mikko Pakarinen, New Children’s Hospital and University of Helsinki (FI) and Prof. Tomas Wester, Head of Pediatric Surgery, Karolinska University Hospital, Stockholm (SE).

 

EUPSA & ERN eUROGEN Joint WebSeminar: Management of Cloacal Exstrophy [YouTube] by Ivo de Blaauw, Wout Feitz, & Thomas Boemers (moderated by Martin Lacher & Augusto Zani) (23 March 2022)

Prof. Wout Feitz, our HCP Network Coordinator Representative and the Workstream Lead for our workstream on rare congenital uro-recto-genital anomalies (WS1) and Prof. Ivo de Blaauw, Radboudumc, Nijmegen (NL), our Expertise Area Coordinator for EA 1.7 Urorectal/Anorectal Malformations, present the Dutch experience of cloacal exstrophy alongside the German experience, presented by Thomas Boemers, Kliniken Köln (DE).

The WebSeminar was moderated by Augusto Zani, Hospital for Sick Children, Toronto (CA) and Martin Lacher, Universitätsklinikum Leipzig (DE), co-chair of our clinical practice guideline on EA 1.7 Anorectal malformation (in development), and our Vice-Expertise Area Coordinator for EA 1.7 Anorectal malformation.

 

Webinar 37: Defining Strategies for Successful Management of Vesicovaginal Fistulas [GoToWebinar][YouTube] by Mariangela Mancini (30 March 2022, rescheduled from 9 March 2022)

Aetiology, incontinence score, fistula size, and timing of surgery are not correlated with successful repair, although size is strictly associated with the length of the fistulous tract. The abdominal approach allows definitive cure even in the most challenging cases when bladder reconstruction is necessary. An extraperitoneal transvesical approach is safe and successful in the majority of cases. Maximal results can be expected in centres of experience after the first attempt on a previously non-treated patient. Minimally invasive techniques, such as laparoscopy or robotic surgery, can reduce the invasiveness of the open approach when properly performed. The keys to success are the standardisation of surgical key points based on experience and centralisation of care in referral centres connected to international networks of expertise.

This webinar was presented on 30 March 2022 by Prof Mariangela Mancini, Azienda Ospedaliera-Università di Padova (IT), the Education Lead for our workstream on rare urogenital tumours (WS3) and our Expertise Area Coordinator for EA 2.5 Interstitial cystitis.

 

Webinar 36: Pediatric Chronic Intestinal Pseudo-Obstruction (CIPO) [GoToWebinar] [YouTube] by Marc Benninga (2 March 2022)

Chronic intestinal pseudo-obstructive (CIPO) conditions are considered the most severe gut motility disorders. They continue to present significant challenges in clinical care despite recent progress in our understanding of pathophysiology, resulting in unacceptable levels of morbidity and mortality. Significant contributors to the disappointing lack of progress in paediatric CIPO include a shortage of clarity and uniformity across all aspects of clinical care, from definition and diagnosis to management.

To assist medical care providers in identifying, evaluating, and managing children with CIPO, experts in this condition within the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN), as well as selected external experts, were charged with the task of developing a uniform document of evidence-based and consensus-based recommendations.

This webinar was presented on 2 March 2022 by Dr Marc Benninga, Emma Children’s Hospital, Amsterdam (NL).

 

Webinar 35: Participate in Patient-Centered Rare Diseases Research with Share4Rare [GoToWebinar] [YouTube] by Elisa Mora (23 February 2022)

Share4Rare is an online community where patients with rare diseases and caregivers can connect and participate in research. Patients can have an active role and incorporate their perspective in research through data donation to scientists. This approach generates knowledge about under-studied diseases and provides scientific and health-related information for patients and families. Moreover, the Share4Rare artificial intelligence algorithm allows people living with rare conditions to reach related patient organisations and peers with the same diagnosis or symptoms in a safe environment.

Whilst Share4Rare is primarily a tool for patients, caregivers, and patient organisations, health professionals will also find it of interest as they can act as prescribers, which can be very positive for all users. Furthermore, research groups may also find the platform interesting, and options for collaboration may exist.

This webinar was presented on 23 February 2022 by Elisa Mora, Platform Manager at Share4Rare.

 

Webinar 34: Phalloplasty – Applications in Cis-Men [GoToWebinar] [YouTube] by Prof. Piet Hoebeke & Prof. Anne-Françoise Spinoit (9 February 2022)

A phalloplasty is a reconstructive option in males with crippled/absent penises. It encompasses a wide variety of surgical techniques aimed at the restoration/creation of a functional phallus in cis and trans males. The presenters outline their technique and their results in a specific population of cis-males with crippled/absent penises.

This webinar was presented on 9 February 2022 by Prof. Piet Hoebeke and Prof. Anne-Françoise Spinoit, Department of Urology at Ghent University Hospital (BE). It was supported by the European Society for Paediatric Urology (ESPU).

 

Webinar 33: Common Needs in Uncommon Conditions [GoToWebinar][YouTube] by Dr Rosanne Smits (2 February 2022)

Despite the inherent rarity of a rare disease, it is not actually rare to have a rare disease. Rare diseases have a significant impact on daily life and a significant psychosocial burden. Research shows remarkable similarities in the need for care across different rare diseases (e.g., coping with uncertainty, quality of life, holistic care, and social support). In this webinar, the presenter addresses these needs for rare diseases and sheds light on how to reach and support as many patients as possible.

This webinar was presented on 2 February 2022 by Dr Rosanne Smits, a researcher in the Department of Medical Psychology, Radboudumc, Nijmegen (NL).

 

Webinar 32: Robotics for the Surgical Treatment of Hirschsprung Disease [GoToWebinar][YouTube] by Dr Alessio Pini Prato (26 January 2022)

Robotic surgery is taking the lead in paediatrics. It allows the performance of complex reconstructive surgical procedures with a minimally invasive approach. Such procedures can not be performed with a classic laparoscopic approach but require a laparotomy due to the complexity of certain technical aspects. Scattered reports have addressed the use of robotics for colorectal surgery in paediatrics. In particular, robotic surgery for rare congenital diseases, such as Hirschsprung’s disease, has been rarely discussed in recent years. To better address and clarify the feasibility of robotic surgery in this specific subset of patients, the presenter outlines a series of 30 patients who underwent robotic surgery for either primary or reiterative surgery for Hirschsprung’s disease between 2017 and 2021 (a 5-year period). Only patients older than one year of age with a delayed diagnosis or with issues leading to reoperation were included. The focus is on indications, technical details, complications and outcomes.

This webinar was presented on 26 January 2022 by Dr Alessio Pini Prato, Director of Paediatric Surgery, Umberto Bosio Center for Digestive Diseases, Alessandria (IT).

 

Webinar 31: Sentinel Node Biopsy for Penile Cancer: Why, When, How, & New Developments [GoToWebinar] [YouTube] by Dr Oscar Brouwer (19 January 2022)

Lymph node status is the most important prognostic factor in penile cancer, and early detection of clinically occult metastasis improves survival. To reduce the morbidity of (modified) inguinal lymph node dissection, dynamic sentinel node biopsy (DSNB) was introduced. Over the years, the procedure has evolved and is undergoing continuous improvements. During this presentation, the clinical rationale, methodology and complications of the traditional DSNB procedure will be shown, and new developments will be highlighted.

This webinar was presented on 19 January 2022 by Dr Oscar Brouwer, Netherlands Cancer Institute, Amsterdam (NL), our Expertise Area Coordinator for EA 3.1 Penile Cancer. It is aimed at healthcare professionals.

 

Webinar 30: Management of Urethral and Bladder Neck Fistulas [GoToWebinar] [YouTube] by Dr Pim Sloots & Prof. Pietro Bagolan (30 November 2021)

This webinar focuses on the diagnosis, treatment, and prognosis of anorectal malformation-type bladder neck fistulas and is aimed at healthcare professionals.

This webinar was presented on 30 November 2021 by Dr Pim Sloots, Erasmus MC, Rotterdam (BE) and Prof. Pietro Bagolan, Ospedale Pediatricio Bambino Gesù, Rome (IT).

 

Webinar 29: Effective Multidisciplinary (MDT) Bladder Pain Syndrome/Interstitial Cystitis (BPS-IC) Healthcare Management [GoToWebinar] [YouTube] by Dr Dick Janssen (9 November 2021)

This webinar focuses on current perspectives for optimal Bladder Pain Syndrome/Interstitial Cystitis (BPS-IC) healthcare management; who should be part of this team approach and what can each specialist bring to the table to change the downward spiral in which many of our BPS-IC patients find themselves. There is a focus on current bottlenecks, available diagnostic requirements, and treatment modalities.

This webinar was presented on 9 November, 2021, by Dr Dick Janssen, Radboudumc, Nijmegen (NL). It is aimed at healthcare professionals.

 

Webinar 28: Management of Cloacal Malformations – What is New in 2021? [GoToWebinar] [Youtube] by Dr Marc Levitt (25 October 2021)

The management of cloacal malformations, including prenatal diagnosis, newborn treatments, surgical reconstruction techniques, and long-term outcomes, was discussed. The webinar is aimed at both healthcare professionals and patient groups.

This webinar was presented on 27 October 2021 by Dr Marc Levitt, Children’s National Hospital, Washington, D.C. (USA).

 

Webinar 27: Perineal Groove – How (Not) to Treat [GoToWebinar] [YouTube] by Dr Inbal Samuk (19 October 2021)

This webinar provides an introduction to the perineal groove. It presents the results of an international multicentric study conducted through the ARM-Net Consortium regarding management and outcome.

This webinar was presented on 19 October 2021 by Dr Inbal Samuk, senior consultant pediatric surgeon, Schneider Children’s Medical Center, University of Tel Aviv (IL).

 

Webinar 26: Stone Management [GoToWebinar] [YouTube] by Ms Kay Thomas & Dr Matthew Bultitude 14 September 2021)

This webinar was a state-of-the-art presentation of the latest evidence for medical and surgical management of cystinuria, including; optimising medical treatment, choosing surgical options, dietary prevention, and patient engagement.

This webinar was presented on 14 September 2021 by Ms Kay Thomas (one of our individual Supporting Partners) and Dr Matthew Bultitude, Guy’s and St Thomas’ Hospitals NHS Foundation Trust, London (UK). It is aimed at healthcare professionals.

 

Webinar 25: Guidelines on Neurogenic Bladder and Bowel in Children and Adolescents [GoToWebinar] [YouTube] by Dr Giovanni Mosiello (6 July 2021)

In children, neurogenic bladder and bowel dysfunction (NBBD) is commonly related to spina bifida. However, many other causes of NBBD are common in daily clinical practice. Patients with NBBD require a multidisciplinary approach and highly specialised treatment, which is not always defined adequately in current guidelines. In addition, these guidelines are not discussed with families and patients, and some difficulties exist regarding implementation. Ultimately, transitional care is critical, and there is a need to facilitate this process.

This webinar was presented on 6 July 2021 by Dr Giovanni Mosiello, Ospedale Pediatricio Bambino Gesù, Rome (IT), our Expertise Area Coordinator for EA 1.4 Non-syndromic urogenital tract malformation.

 

Webinar 24: Hydrocolonic Sonography and Self-Management in Patients with Incontinence – Tools to Facilitate Bowel Management [GoToWebinar] [YouTube] by Stefanie Märzheuser & Annette Lemli (22 June 2021)

Despite good surgical repair of anorectal malformation (ARM) and optimal pull-through in Hirschsprung’s disease, impaired bowel function is common. Bowel management and transanal irrigation are established means to control incontinence symptoms and increase patients’ quality of life. Hydrosonography assesses the amount of fluid needed to clean the colon from the anal canal to the cecum. Sonography is performed after colonic preparation and is helpful for the detection of incomplete stool evacuation. Lack of radiation exposure makes it a valuable option for assessment and follow-up of therapeutic efforts, both in pediatric and older patients. The ability to tailor treatment to individual patients keeps hospitalisation to a minimum. With the help of self-management, we can make children independent from parents and carers before puberty.

This webinar was presented on 22 June 2021 by Stefanie Märzheuser (one of our individual Supporting Partners), now at Universitätsmedizin Rostock (DE) & Annette Lemli, Charité Universitätsmedizin Berlin (DE).

 

Webinar 23: Quality of life in patients with Anorectal Malformation (ARM) [GoToWebinar] [YouTube] by Caterina Grano, Chris Verhaak, & Aukje Aerts (25 May 2021)

ARMs significantly affect the quality of life (QoL) because of functional impairments and psychosocial wellbeing, sexuality and self-esteem. In addition, treatment options are invasive and require intense disease management, impacting the daily life of children, adolescents, adults and their families. This presentation highlights the state of the art regarding research on QoL and mental health in children and adults with ARM. In addition, the theoretical framework and implications for paediatric clinical practice and an overview of psychosocial interventions are presented. The webinar is given by experts in research on QoL and a psychologist involved in daily clinical practice with children and adolescents with ARM and their parents.

This webinar was presented on 25 May 2021 by clinical psychologists Ass Prof Caterina Grano, Department of Psychology, Sapienza University, Rome (IT), Ass Prof Chris Verhaak, paediatric psychology, Radboudumc Nijmegen (NL), and Aukje Aerts, Health Psychologist, Radboudumc Nijmegen (NL).

 

Webinar 22: Should we Abandon Laparoscopy in Adrenocortical Carcinoma (ACC)? [GoToWebinar] [YouTube] by Hans Langenhuijsen (11 May 2021)

During this webinar, the surgical techniques for adrenocortical carcinoma (ACC) are highlighted. The pros and cons of minimally invasive surgery for ACC are discussed, including the possible risks. Is there a role for laparoscopy, or should ACC always be operated on with an open surgical technique?

This webinar was presented on 11 May 2021 by Mr. Hans Langenhuijsen, Rabdoudumc, Nijmegen (NL), the Workstream Lead for our workstream on rare urogenital tumours (WS3) and our Expertise Area Coordinator for EA 3.3 Adrenal tumours.

 

Webinar 21: Penile cancer – A Patient Perspective [GoToWebinar] [YouTube] by Rob Cornes, John Osborne, & Kenneth Manzie (4 May 2021)

In this webinar, Rob Cornes, Male Cancer Information Nurse Specialist at Orchid (the UK’s leading charity working for those affected by or interested in prostate, testicular and penile cancer), first examines the facts and figures around penile cancer and how support can be provided to patients living with a disease that can have profound psychological and physical impacts. The second part of the webinar is led by John Osborne, who details his experiences as a penile cancer patient. He now works as an advocate for penile cancer care, along with another patient, Kenneth Manzie.

This webinar was presented on 4 May 2021 by Rob Cornes, John Osborne, & Kenneth Manzie, our European Patient Advocacy Group (ePAG) Advocates for EA 3.1 Penile cancer. This webinar is aimed at both health professionals and patient groups.

 

Webinar 20: Syndromic Forms of Caudal Malformations [GoToWebinar] [YouTube] by Prof. Sabine Sarnacki & Dr Celia Cretolle (20 April 2021)

This webinar focuses on syndromic forms of caudal malformations.

This webinar was presented on 20 April 2021 by Prof. Sabine Sarnacki & Dr Celia Cretolle, Department of Paediatric Surgery, Hôpital Necker-Enfants Malades, Paris (FR).

 

Webinar 19: Management of Bladder Exstrophy During Childhood [GoToWebinar] [YouTube] by Prof. Alaa El-Ghoneimi, Prof. Marc David Leclair, Prof. Henri Lottman, & Associate Prof. Thomas Blanc (13 April 2021)

This webinar aims to present the current management of bladder exstrophy in France. It will focus on the timing of surgery after birth; type of closure (Kelly procedure and complete reconstruction); the management of complications after closure (UTIs and dilatation of the upper urinary tract); and the management of persistent incontinence (bulking agents, bladder neck reconstruction, augment and Mitrofanoff).

The webinar was presented on 13 April 2021 by Prof. Alaa El-Ghoneimi, University of Paris, Robert Debré Hospital (FR), our Expertise Area Coordinator for EA 1.2 Bladder exstrophy/epispadias, Prof. Marc David Leclair, Nantes University and Hospital (FR), Prof. Henri Lottman, University of Paris, Necker Hospital (FR), and Assoc. Prof. Thomas Blanc, University of Paris, Necker Hospital (FR). It is aimed at healthcare professionals and patient groups and was supported by the European Society for Paediatric Urology (ESPU).

 

Webinar 18: Bowel Management in Children with Anorectal Malformation (ARM) [GoToWebinar] [YouTube] by Dr Barbara Daniela Iacobelli & June Rogers MBE (30 March 2021)

Bowel management plays a pivotal role in treating faecal incontinence and hence the quality of life of patients living with this condition. This webinar focuses on the importance of bowel management in patients operated on for anorectal malformation (ARM). The treatment of these patients starts with the surgical procedure, which represents only the first step of a long pathway.

The webinar was presented 0n 30 March 2021 by Dr Barbara Daniela Iacobelli, Children’s Hospital Bambino Gesu, Rome (IT), and June Rogers MBE, a former specialist nurse and representative for the patient organisation Bladder & Bowel UK. It is aimed at both healthcare professionals and patient groups.

 

Webinar 17: Challenges in Oncologic Treatment of Retroperitoneal Sarcomas [GoToWebinar] [YouTube] by Dr Nina Dabelić (9 March 2021)

Sarcomas are a rare and very heterogeneous group of malignant tumours with more than 70 different histologic subtypes. Their biologic and clinical behaviour and response to oncologic therapies can vary widely across different subtypes. Retroperitoneal localisation of sarcomas represents an additional challenge for diagnosis and treatment, for various reasons that are discussed. Certain principles of oncological management of retroperitoneal sarcomas are outlined. The need for individualised tumour assessment and patient-tailored therapeutic decision-making within a multidisciplinary tumour board are highlighted. Several patient cases are presented to illustrate the topic.

This webinar was presented on 9 March 2021 by Dr Nina Dabelić, clinical oncologist, Department of Oncology and Nuclear Medicine, University Hospital Centre Sestre Milosrdnice, Zagreb (HR). It is aimed at healthcare professionals. The presentation was co-authored by Prof. Ana Fröbe, University Hospital Centre Sestre Milosrdnice, Zagreb (HR).

 

Webinar 16: VACTERL or Not VACTERL – Does it Matter? For Geneticists, Patients, & Clinicians [GoToWebinar] [YouTube] by Dr Carlo Marcelis & Prof. Ernesto Leva (23 February 2021)

This webinar presents the views of both a geneticist and a surgeon on the importance of VACTERL diagnosis. VACTERL association is the non-random occurrence of a combination of vertebral, anal, and cardiac anomalies, trachea-oesophageal fistula with oesophageal atresia, radial anomalies, and renal dysplasia. The clinical diagnosis can be made when at least three component features are present.

This webinar was delivered on 23 February 2021 by  Dr Carlo Marcelis, Department of Human Genetics, Radboudumc, Nijmegen (NL) who presents the case from the geneticists’ side, and Prof. Ernesto Leva, Director of the Department of Pediatric Surgery, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan (IT) who presents the view from the surgeons’ side. The webinar is aimed at both healthcare professionals and patients.

 

Webinar 15: Reconstructive Surgery Following Penile Cancer [GoToWebinar] [YouTube] by Prof. Vijay Sangar (9 February 2021)

Penile cancer can be a physically and functionally impairing disease. This webinar discusses different cases and how reconstruction can be utilised to maintain penile anatomy and function as best as possible. This can include reconstruction of small defects to phalloplasty.

The webinar was presented on 9 February 2021 by Prof. Vijay Sangar, Christie NHS Foundation Trust, Manchester (UK), former Workstream Lead for our workstream on rare urogenital tumours (WS3) (until Brexit). It is aimed at healthcare professionals.

 

Webinar 14: Posterior Urethral Valves (PUV) – Treatment & Follow-up From a Paediatric Urological Perspective [GoToWebinar] [YouTube] by Assoc. Prof. Sofia Sjöström & Assoc. Prof. Gundela Holmdahl (12 January 2021)

This webinar focuses on posterior urethral valves (PUV), the most common congenital obstruction of the lower urinary tract in boys, with an incidence of 1:5000 births. PUV carries a high risk of renal dysplasia, hydronephrosis, vesicoureteral reflux, bladder dysfunction, and prenatal oligohydramnios with lung hypoplasia. Surgical treatment with ablation of the valves is a small endoscopic intervention, but the long-term consequences of the valves can be fatal. Renal impairment is often progressive, and the lifetime risk of end-stage renal disease is up to 30%. Prognostic factors include prenatal diagnosis and oligohydramnios, nadir creatinine in the first year of life, reflux, recurrent urinary tract infections, bladder dysfunction, and polyuria. The main goal of treating boys with PUV is to preserve renal function. In this webinar, the urological treatment is discussed, initially and at follow-up.

This webinar was presented on 12 January 2021, by Assoc. Prof. Sofia Sjöström, The Queen Silvia Children´s Hospital, Gothenburg (SE) and Assoc. Prof. Gundela Holmdahl, Karolinska University Hospital, Stockholm (SE), our Vice-Expertise Area Coordinator for EA 1.2 Bladder exstrophy/epispadias. It is aimed at healthcare professionals.

 

Webinar 13: Newborn Management of Anorectal Malformation (ARM) in Female Patients [GoToWebinar] [YouTube] by Dr Jan-Hendrik Gosemann & Dr Herjan van der Steeg (15 December 2020)

This webinar presents a diagnosis and treatment flowchart based on an ARM-Net consensus concerning the diagnosis and early management of newborns with anorectal malformation (ARM). The presentation focuses on the different ARMs in female patients. Diagnostic measures and timing are presented, supported by pictures of different female ARMs. Suggestions concerning diagnostics and further therapy are given, considering the audience’s resources and experience. Take-home messages on initial diagnostics and (surgical) management are provided.

This webinar was presented on 15 December 2020 by Dr. Jan-Hendrik Gosemann, Universitätsklinikum Leipzig (DE), co-chair for the ERN eUROGEN clinical practice guideline on EA 1.7 Anorectal malformation (in development), and Dr. Herjan van der Steeg, Radboudumc, Nijmegen (NL). It is aimed at healthcare professionals.

 

Webinar 12: Complex Urethral Reconstruction – The Two-Staged Meshgraft Technique [GoToWebinar] by Prof. Margit Fisch & Dr. Tim Ludwig (24 November 2020)

A two-stage repair of urethral strictures is indicated if the urethral plate is narrow and scarred with a lumen of less than 6F or if it is not salvageable. Today buccal mucosa (BM) is the preferred tissue for urethral reconstruction. However, longer grafts are associated with increased morbidity at the harvesting site. Exposure to air with subsequent shrinkage is another disadvantage of BM. Thus, in long, complex strictures requiring a staged procedure, the presenters prefer the Meshgraft-technique (harvested from the inner thigh) described by Prof. Schreiter in 1984. They discuss the indications based on case presentations. The main focus is on the step-by-step surgical technique (video stage I) and tips and tricks. They present their experience and how to manage complications.

This webinar was presented by Prof. Margit Fisch, the Workstream Lead for our workstream on functional urology (WS2), and Dr Tim Ludwig, both from Universitätsklinikum Hamburg-Eppendorf (DE). It was aimed at healthcare professionals.

 

Webinar 11: Intermittent (Self-)Catheterisation in Children: Teaching, Guidance and Follow-Up Care by Nurse Specialists & Urotherapists [GoToWebinar] [YouTube] by Hanny Cobussen-Boekhorst (3 November 2020)

The introduction of intermittent catheterisation (IC) represented a urological revolution for patients with different (neurological) diagnoses and bladder-emptying difficulties. From the very beginning, nurses were involved in this treatment and nowadays, in most countries, nurses teach and coach IC to patients. Nowadays, the technique of IC is applied to all age groups and has become an important therapeutic tool in paediatric urology. The goal of teaching IC is to provide a bladder-management program that promotes optimal health, self-esteem, and independence. During the presentation, the history and definition of IC are discussed, as well as various ways of teaching IC to children.

This webinar was presented on 3 November 2020 by Hanny Cobussen-Boekhorst, nurse practitioner and urotherapist specialising in continence and stoma care, Division of Paediatric Urology, Radboudumc, Nijmegen (NL). This webinar is aimed at both healthcare professionals and patient groups.

 

Webinar 10: Newborn Management of Anorectal Malformation (ARM) in Male Patients [GoToWebinar] [YouTube] by Prof. Paola Midrio & Prof. Ivo de Blaauw (20 October 2020)

Anorectal malformation (ARM) is a rare congenital anomaly treated by paediatric surgeons with different levels of experience. Experience is often limited by the small number of cases per surgeon. This interactive webinar systematically discusses the newborn management of male patients, demonstrating clinical cases and explaining the international classification for ARM (Krickenbeck), the preoperative workup, and surgical management of male newborn patients.

This webinar was presented on 20 October 2020 by Prof. Paola Midrio, Cà Foncello Hospital, Treviso (IT) and Prof. Ivo de Blaauw, Radboudumc, Nijmegen (NL), our Expertise Area Coordinator for EA 1.7 Urorectal/Anorectal Malformations.

 

Webinar 9: Female Incontinence: From Diagnosis to Treatment in Complex Cases [GoToWebinar] [YouTube] by Frank Van der Aa (15 September 2020)

The diagnosis and treatment of complex female incontinence are challenging and solid evidence is non-existent in this field. The condition is mainly treated in expert centres where pooled experience exists. This presentation covers how these complex cases are approached in the presenter’s centre, along with a discussion around current treatment algorithms.

This webinar was presented on 15 September 2020 by Prof. Frank Van der Aa, a specialist in female & functional urology and reconstructive urology, University Hospital Leuven (BE), the Education Lead for our workstream on functional urology (WS2).

 

Webinar 8: Paediatric Colorectal Surgery: An Introduction to the ERN eUROGEN Anorectal Malformation (ARM) Webinars [GoToWebinar] [YouTube] by Prof. Ivo de Blaauw & Ms Dalia Aminoff (21 July 2020)

This webinar is the first in our series covering all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations.

In the webinar, the relevance of ERN eUROGEN, ARM-Net, and other international networks was introduced and explained, and future topics for webinars were discussed.

This webinar was presented on 21 July 2020 by Prof. Ivo de Blaauw, Radboudumc, Nijmegen (IT), our Expertise Area Coordinator for EA 1.7 Urorectal/Anorectal Malformations, and Ms Dalia Aminoff, Chair of our European Patient Advocacy Group.

 

Webinar 7: Reconstructive Surgery in Females for Vesicovaginal Fistulae, Vaginal Masses, and Urethral Diverticulae [GoToWebinar] [YouTube] by Dr John Heesakkers (16 June 2020)

This is a practical webinar focusing on rare functional urological diseases and complications:

  • Firstly, the general principles of assessment of vesicovaginal fistulae are explained,
  • Secondly, a case is presented of the vaginal excision of a huge vaginal mass with a good functional outcome afterwards,
  • Thirdly, a case is presented of the workup of a urethral diverticulum with a surgical video as an example (which can be found as a separate video [GoToWebinar] [YouTube])

This webinar was presented on 16 June 2020 by Dr John Heesakkers, Radboudumc, Nijmegen (now at Maastricht UMC) (NL) our Expertise Area Coordinator for EA 2.1 Complicated & complex pelvic floor disorders.

 

Webinar 6: Adrenal Incidentaloma: To Biopsy or Not? [GoToWebinar] [YouTube] by Mr. Hans Langenhuijsen (12 May 2020)

Adrenal incidentalomas are found in up to 10% of CT scans performed for non-adrenal indications. This webinar aims to illuminate the basic knowledge about adrenal diseases for urologists and the appropriate diagnostic work-up. What should be the steps upon finding an adrenal incidentaloma? The importance is emphasised of a multidisciplinary team (MDT) approach in evaluating endocrine activity and the radiological characteristics. The indications are assessed for surgery and for follow-up when surgery is not indicated. The specific role of biopsy for inconclusive adrenal tumours on imaging is discussed.

This webinar was presented on 12 May 2020 by Mr. Hans Langenhuijsen, Rabdoudumc, Nijmegen (NL), the Workstream Lead for our workstream on rare urogenital tumours (WS3) and our Expertise Area Coordinator for EA 3.3 Adrenal tumours.

 

Webinar 5: Complex Urethral Reconstruction in Males with Case Presentations [GoToWebinar] by Prof. Margit Fisch & Dr. Tim Ludwig (14 April 2020)

An overview of current concepts for treating urethral stricture disease, including the presentation and discussion of three cases of complex strictures.

This webinar was presented on 14 April 2020 by Prof. Margit Fisch, the Workstream Lead for our workstream on functional urology (WS2), and Dr Tim Ludwig, both from Universitätsklinikum Hamburg-Eppendorf (DE). It was aimed at healthcare professionals.

 

Webinar 4: Proximal Hypospadias [GoToWebinar] [YouTube] by Magdalena Fossum (10 March 2020)

This webinar gives an update on incidence, aetiology, and long-term follow-up reports. Important surgical considerations and appropriate techniques when dealing with proximal hypospadias are presented.

This webinar was presented by Prof. Magdalena Fossum, Rigshospitalet, Copenhagen (DE), the Research Lead for our workstream dealing with rare congenital uro-recto-genital anomalies (WS1), co-chair of our Clinical Decision Support Tool on EA 1.5 Posterior urethral valves, and our Expertise Area Coordinator for EA 1.6 Posterior hypospadias.

 

Webinar 3: Fertility Preservation Following Testis Cancer [GoToWebinar] [YouTube] by Hussain Alnajjar (25 February 2020)

An insight into how to maximise the fertility potential and preserve patients’ fertility reserve when diagnosed with testicular cancer.

This webinar was presented by Mr Hussain Alnajjar, University College London Hospitals (UK).

 

Webinar 2: Late Effects of Penile Cancer – Lymphoedema [GoToWebinar] [YouTube] by Benjamin Ayres (12 November 2019)

Penile cancer is one of the rare urogenital cancers. It may significantly impact the physical and psychological well-being of affected males. The extent of lymph node involvement is an important prognostic factor, and effective management of regional lymph nodes is key to patient survival. Surgical excision of the affected lymph nodes is often necessary. It can be associated with significant morbidity in the long term, causing retention of lymphatic fluid in the subcutaneous tissues of the genital organs and the lower limbs. Genital and lower limb lymphoedema can be debilitating and difficult to manage. This webinar overviews the current state of lymphadenectomy in penile cancer and discusses the long-term management of lymphoedema.

This webinar was presented by Mr Benjamin Ayres, St. George’s Hospital, London (UK), former Expertise Area Coordinator for EA 3.1 Penile Cancer (until Brexit).