Upcoming Events

July 2021

ERN eUROGEN WS2 Quarterly Meeting, GoToMeeting (29 July)

September 2021

European Association of Urological Nurses Annual Congress (EAUN21), Virtual (3-4 September)
ERN Internal Coordinators Group Meeting, Virtual (6 September)
ERN eUROGEN Guidelines Expert Panel Kick-Off Meeting, GoToMeeting (7 September)
ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (7 September)
ERN eUROGEN WS Leads Bi-Monthly Meeting, GoToMeeting (7 September)
Round Table: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community, Virtual (7 September)
EJP RD Training Orphanet nomenclature and Orphanet Rare Disease Ontology – ORDO for clinicians/researchers, Online (10 September)
American Urological Association (AUA) Meeting, Virtual & Las Vegas, US (10-13 September)
ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (13 September)
Clinical Trials in Rare Diseases Conference, Virtual (14 September)
EJP RD General Assembly and Consortium Meeting, Virtual (14-16 September)
EURORDIS #30millionreasons campaign update, Webinar (15 September)
German Society of Urology (DGU) Meeting, Stuttgart, DE (15-18 September)
European Society for Medical Oncology (ESMO) Congress, Virtual (17-21 September)
Alliance of Chronic Rare Diseases (ACHSE) National Conference on Rare Diseases: Together for a Better Life, Virtual (23-24 September)
Global Genes RARE Patient Advocacy Summit, Virtual (27-29 September)
EJP RD International Summer School on Rare Disease Registries and FAIRification of Data, Virtual (27 September-1 October) (Register for Reserve List until 12 September)
EJP RD Workshop: The Basics & Beyond: Clinical Epidemiological Research for ERNs , Virtual (30 September) (Registration Closed)
SIOPE-MAC Webinar for Gold September: Childhood Cancer Awareness Month, Webinar (30 September)

October 2021

ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (4 October)
ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (5 October)
EFPIA Workshop: Accelerating Adoption of Complex Clinical Trials in Europe and Beyond, Virtual (5 October)
RAREsummit21, Virtual (7 October)
EAU Section of Genito-Urinary Reconstructive Surgeons (ESGURS) Meeting, Madrid, ES (7-8 October)
EAU Section of Urological Research (ESUR) Meeting, Virtual (8-9 October)
International Conference on Health Promoting Hospitals and Health Services (HPH), Virtual & Paris, FR (12 October)
EURORDIS: Deep dive on the integration of ERNs into national health systems , Webinar(14 October)
EJP RD: European Paediatric Translational Research Infrastructure (EPTRI), Webinar (14 October)
National Disease Registration Service (NDRS): Get Data Out – The Impact of Cancer Data , Webinar(14 October)
Fondation Maladies Rares: Encounters with Rare Diseases Congress, Virtual (14-15 October)
International Continence Society (ICS) Meeting, Virtual (14-17 October)
Better Medicines for Children Conference: Global Paediatric Drug Development Challenges & Solutions, Virtual (18-19 October)
National Organization for Rare Disorders (NORD) Rare Breakthrough Summit 2021, Virtual (18 October)
ERN Coordinators Group Meeting, Brussels, BE (22 October)
ERN eUROGEN WS2 Quarterly Meeting, GoToMeeting (28 October)
European Patients’ Forum Congress, Virtual (28-29 October)
ESU & EAU Section of Transplantation Urology (ESTU) Masterclass on Kidney transplant, Madrid, ES (28-29 October)
TEHDAS Joint Action Stakeholder Forum (TBC)

November 2021

ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (1 November)
ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (2 November)
ERN eUROGEN WS Leads Bi-Monthly Meeting, GoToMeeting (2 November)
ESU & EAU Section of Female and Functional Urology (ESFFU)Masterclass on Functional Urology, Nijmegen, NL (3-4 November)
EURORDIS All ePAG Meeting: Inspiring Collaboration and Fostering Partnership in the ERNs, Virtual (4-5 November)
German Continence Society Congress, Virtual (5-6 November)
Europe Biobank Week 2021 Congress, Virtual (8-10 November)
EATRIS Winter School 2021: Translational Medicine Explained (TMex), Virtual (8-12 November)
International Society for Neonatal Screening (ISNS) European Regional Meeting, Virtual & Luxembourg (10-12 November)
Société Internationale d’Urologie (SIU) Congress, Dubai, SA (10-14 November)
European Multidisciplinary Congress on Urological Cancers (EMUC21), Athens, GR (25-28 November)

December 2021

ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (6 December)
ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (7 December)
Rare Disease Innovation & Partnering Summit, Virtual & Boston, US (6-10 December)
HOPE: Capturing the Patients’ Voices on Patient Safety, Webinar (14 December)

January 2022

ERN eUROGEN Strategic Board Meeting (TBC, dependent on new members joining)
ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (TBC)
ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (TBC)
ERN eUROGEN WS Leads Bi-Monthly Meeting, GoToMeeting (TBC)
EAU Section of Oncological Urology (ESOU) Meeting (21-23 January)
ERN eUROGEN WS2 Quarterly Meeting, GoToMeeting (27 January)

February 2022

ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (1 February)
ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (7 February)
European Urology Residents Education Programme (EUREP), Prague, CZ (4-9 February)
EURORDIS Black Pearl Awards, Virtual (8 February)
Rare Disease Day, Virtual & Global (28 February)

March 2022

ERN eUROGEN WS3 Monthly Meeting, GoToMeeting (1 March)
ERN eUROGEN WS1 Monthly Meeting, GoToMeeting (7 March)
ERN eUROGEN WS Leads Bi-Monthly Meeting, GoToMeeting (7 March)
Research for Rare International Symposium: The Translational Science of Rare Diseases – From Rare to Care IV, Tutzing, near Munich, DE (30 March-1 April)

June 2022

European Conference on Rare Disease & Orphan Products (ECRD), Virtual (27 June – 1 July)

July 2022

University of Zurich (UZH) University Research Priority Program (URPP) Innovative Therapies in Rare Diseases (ITINERARE) Rare Diseases Summer School, Warth-Weiningen, CH (13-15 July)