At present, ERN eUROGEN comprises 56 Healthcare Provider (HCP) Full Members and Affiliated Partners (Associated National Centers and National Coordination Hubs) from 20 Member States. Each year, these HCPs care for around 12,500 patients diagnosed with rare urological diseases and complex conditions within the network’s Workstreams and Expertise Areas. The members use a hub and spoke model at the national level, referring rare or complex cases from a primary/secondary local centre to a tertiary centre, broadening coverage and reaching more HCPs and patients depending on national healthcare systems and policies. ERN eUROGEN has a Non-Compliance & Termination Procedure for HCPs in case expertise is not maintained, there is insufficient participation in ERN activities, or there are ethical/legal concerns or transparency issues. If unresolved, the Coordination Team asks the Strategic Board to vote, and member termination proceeds following EC regulations. ERN full members are assessed and proven to meet the criteria in EC delegated decision 2014/286/EU. These criteria identify Excellence Centres across the EU/EEA that: have enough patients according to the best practice information available, have expertise recognised at the national level by the Ministry of Health, and have expertise recognised at the European level. For some of its Expertise Areas, ERN eUROGEN has set further specific criteria which are required for full members. At its launch in 2017, ERN eUROGEN consisted of 29 healthcare providers (HCPs) as full members. The UK withdrawal from the European Union took effect on 1 January 2021, and six UK healthcare providers ceased to be part of the network. However, ERN eUROGEN continues to collaborate with individual UK-based clinicians as Supporting Partners. Following a 2019 call, new HCPs applied to join existing ERNs. ERN eUROGEN carried out an internal peer review, a sample was assessed by the Independent Assessment Body, and all applicants were reviewed by the Board of Member States for ERNs (BoMS) who made their final decision. 30 new full members joined ERN eUROGEN on 1 January 2022 (some of these new Full Members were previously Affiliated Partners). Following the first five-year evaluation of the ERNs in 2023, one full member withdrew, giving a current total of 51 full member HCPs. These are listed below. Each Full Member: 🇦🇹 AT – Austria: 🇧🇪 BE – Belgium: 🇨🇿 CZ – Czechia: 🇩🇪 DE – Germany: 🇩🇰 DK – Denmark: 🇪🇸 ES – Spain: 🇫🇮 FI – Finland: 🇫🇷 FR – France: 🇭🇷 HR – Croatia: 🇮🇹 IT – Italy: 🇱🇹 LT – Lithuania: 🇳🇱 NL – Netherlands: 🇵🇱 PL – Poland: 🇵🇹 PT – Portugal: 🇸🇪 SE – Sweden: In 2019, two types of Affiliated Partners (Associated National Centres and National Coordination Hubs) were designated to work with ERNs by the Board of Member States for ERNs (BoMS) in EU/EEA Member States where no Full Members exist, usually in countries with small populations that therefore could not comply with the requirements to become Full Members. Each ERN eUROGEN Affiliated Partner (AP): ERN eUROGEN’s current Associated National Centres and National Coordination Hubs are listed below. ERN eUROGEN received ANC designations from Latvia, Austria, Croatia, and Spain. Some of these took part in the 2019 call to become full members. The remaining ANCs are listed below: 🇱🇻 LV – Latvia: ERN eUROGEN received HUB designations from Hungary, Luxembourg, Malta, and Slovenia. These HUBs are listed below: 🇭🇺 HU – Hungary: 🇱🇺 LU – Luxembourg: 🇲🇹 MT – Malta: 🇸🇮 SI – Slovenia:
Healthcare Providers
Map
Full Members
Affiliated Partners – Associated National Centres
Affiliated Partners – National Coordination Hubs
Full Members
Representatives: Josef Oswald & Bernhard Haid
Representatives: Stefan de Wachter & Gunter de Win
Representatives: Anne-Françoise Spinoit, Thomas Tailly, François Hervé & Nicolaas Lumen
Representatives: Frank Van der Aa, Maarten Albersen, Guy Bogaert, & Marc Miserez
Representatives: Roman Zachoval, Thomas Büchler, Katarina Otavova, Viktoria Filipkova, Anita Mislai, Radka Lohynska, Ludmila Boublikova, Pavel Skrobanek, Sona Krivonoskova & Kristian Hrusak
Representatives: Radim Kočvara & Josef Sedláček
Representatives: Wim van Gemert & Mark Schneider
Representatives: Tabea Schröder & Karin Rothe
Representatives: Eberhard Schmiedeke & Christian Lorenz
Representatives: Peter Albers, Daniel Nettersheim & Yue Che
Representatives: Margit Fisch, Timothy Ludwig, Armin Soave & Timo Nieder
Representatives: Jan-Hendrik Gosemann, Oliver Deffaa & Martin Lacher
Representatives: Raimund Stein & Nina Younsi
Representatives: Oliver Muensterer, Martina Heinrich & Anne-Sophie Holler
Representatives: Wolfgang Rösch & Franziska Vauth
Representatives: Sara Brucker, Jörg Fuchs, Alice Höller, Andreas Schmidt, Katharina Rall, Katharina Schlammerl, Lena Mesch, Sahra Steinmacher, Tobias Luithle, Verena Ellerkamp
Representatives: Anne-Karoline Ebert & Alexandre Serra
Representatives: Yazan Rawashdeh & Gitte Hvistendahl
Representatives: Jørgen Thorup & Magdalena Fossum
Representatives: Beatriz Martinez Gonzalez & Poldark Francisco Cáceres Rodríguez
Representatives: Anna Bujons Tur & Alberto Breda
Representatives: Luis Garcia Aparicio & Oriol Martin Sole
Representatives: Manuel Lopez, Romy Gander, Carlos Giné, Gloria Royo Gomes & Marino Asensio Llorente
Representatives: José Medina-Polo, Andres Gomez-Fraile, Cristina Pilar Tordable & Daniel Cabezalí
Representatives: Pedro Lopez Pereira & Maria Jose Martinez Urrutia
Representatives: Jose Luis Gutierrez Baños, Mario Dominguez-Esteban, Felix Campos Juanatey & Paola Calleja-Hermosa
Representatives: Seppo Taskinen & Eija Mäkelä
Representatives: Nathalie Botto, Celia Cretolle & Sabine Sarnacki
Representatives: Alaa El Ghoneimi & Matthieu Peycelon
Representatives: Tomislav Kuliš & Luka Penezić
Representatives: Lucia Migliazza, Maurizio Cheli, Daniele Vavassori & Francesco Lacanna
Representatives: Mario Lima, Vincenzo Davide Catania & Giovanni Ruggieri
Representatives: Ernesto Leva & Antonio Di Cesare
Representatives: Alessando Morlacco & Francesco Fascetti Leon
Representatives: Pietro Bagolan, Barbara Iacobelli, Giovanni Mosiello & Maria Luisa Capitanucci
Representatives: Emilio Sacco & Carlo Gandi
Representatives: Alessandro Giammò, Simona Gerocarni Nappo, Enrico Ammirati & Marco Falcone
Representatives: Gilvydas Verkauskas, Rimante Cerkauskiene & Vytis Kazlauskas
Representatives: Ernst van Heurn & Ramon Gorter
Representatives: Oscar Brouwer & Niels Graafland
Representatives: Paul Broens & Anton van Dijk
Representatives: Wout Feitz, Ivo de Blaauw, Hans Langenhuijsen & Floris Ferenschild
Representatives: Cornelius “Pim” Sloots, Katja Wolffenbuttel, Arnout Alberts & Tahlita Zuiverloon
Representatives: Laetitia de Kort, Aart Klijn, Britt Suelmann, Daniëlle Zweers, Leendert Looienga, Michel Wyndaele, Peter-Paul Willemse & Richard Meijer
Representatives: Piotr Czauderna, Andrzej Gołębiewski & Stefan Anzelewicz
Representatives: Rafal Chrzan & Barbara Dobrowolska-Glazar
Representatives: Maria Mauricio & António Morais
Representatives: Kate Abrahamsson, Michaela Dellenmark Blom & Josefin Nordenström
Representatives: Pernilla Stenström, Magnus Anderberg, Ann Nozohoor Ekmark, Anna Borjesson, Louise Tofft, Martin Salo, Mette Hambraeus & Morten Vigen
Representatives: Gundela Holmdahl & Lotta Renström
Representatives: Anders Stenbäck & Thora OlafsdottirAffiliated Partners
Associated National Centres
Representatives: Valts Abols & Lasma LidakaNational Coordination Hubs