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INNOVCare Project: Results demonstrate need for integrated care for rare disease patients
20 September 2018The results of the INNOVCare Project (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) were announced at...
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ePAG Steering Committee
20 September 2018From 13-14 September, the ePAG Steering Committee met in Brussels, with Dalia Aminoff and Serena Bartezzati representing eUROGEN. Birute...
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EU Funding News
17 July 2018New call for proposals A new call for ERNs to apply to the Connecting European Facilities Fund (CEF) was...
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Genetic Alliance UK Event, Houses of Parliament, London
17 July 2018Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients...
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ERN Coordinators Group (ERN CG) Meeting, Brussels
17 July 2018Prof Wout Feitz (WS1 Lead) (NL) and Michelle Battye (Manager) (UK) represented eUROGEN at the ERN CG meeting on...
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2nd Annual eUROGEN Strategic Board Meeting, Noordwijk
17 July 2018We held our 2nd Annual Strategic Board meeting in Noordwijk from 11-12 June 2018, with 43 attendees representing our...
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eUROGEN: Improving lives for patients with rare diseases
18 March 2018The European Reference Network (ERN) eUROGEN is already the most proactive of the 24 ERNs approved and funded by...
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EU Commissioner Vytenis Andriukaitis on eUROGEN
16 March 2018Prof Chris Chapple introduces EU Commissioner Vytenis Andriukaitis at the EAU18 opening ceremony, after a dynamic performance by the...
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One quarter of penis cancer sufferers don’t get recommended treatment – halving the survival rate
15 March 2018A major international survey has found that around a quarter of patients are not receiving the recommended treatment for...
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Position Statement from the European Reference Networks (ERNs) Network Coordinators
27 February 2018As Coordinators of the 24 European Reference Networks (ERNs), we stand together and united with our 900 strong members...
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