Support Actions for Ukrainian Spina Bifida Patients24 March 2023
ERN eUROGEN is collaborating with the International Federation for Spina Bifida and Hydrocephalus (IFSBH) and has signed a Memorandum of Understanding with...0
ERN eUROGEN at EAU23: Successful Session24 March 2023
ERN eUROGEN held a very successful and well-attended Thematic Session on rare and complex urology at the 38th Annual...
Submitted: 5-year Evaluation of the European Reference Networks24 March 2023
ERN eUROGEN has successfully submitted its information for the 5-year evaluation of the European Reference Networks. This is in...
New ERN eUROGEN Exchange Programme Launched1 February 2023
The ERN eUROGEN Exchange Programme follows and will build upon the successful first exchange programme facilitated by the EC...
CureforU: Present or Discuss ARM and Hirschprung’s Cases on Global Online Platform14 December 2022
CureforU is an online platform which facilitates better cures for people living with rare or complex diseases by enabling...
Joint Work between ERNs eUROGEN & ITHACA on Spinal Dysraphism14 November 2022
Patients with spina bifida face many challenges growing up, including urological problems, which significantly impact their quality of life....
Positive Feedback for ERN eUROGEN Webinars14 November 2022
ERN eUROGEN’s webinar programme began in 2019 and expanded in 2022 to deliver more sessions. To evaluate our audience’s...
UnoSguardoRaro: Rare Disease International Film Festival, 10-22 November 20228 November 2022
The VII edition of UnoSguardoRaro: Rare Diseases International Film Festival (RDIFF) will shine a spotlight, not on diseases, but...
Orphanet Data for Rare Disease (OD4RD) Final Meeting8 November 2022
The final meeting of the Orphanet Data for Rare Disease (OD4RD) project led by Orphanet took place in Paris...
ERN CG & BoMS Meetings, 4-5 October 202211 October 2022
The 24 ERN Coordinators meet regularly with the European Commission (EC) to drive forward the work of the ERNs,...