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Urology Week 2026: Rare and Hereditary Kidney Cancer
24 September 2026This year’s Urology Week, running from 28 September to 2 October 2026, puts kidney cancer in the spotlight. As...
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Consensus Statement/CDST on Vaginal Replacement in ARM
23 September 2026An international consensus statement and clinical decision support tool (CDST) on the timing and considerations of vaginal replacement in...
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DeCODe Project Complete: Paediatric and Orphan Medical Devices
23 September 2026DeCODe (Develop Child and Orphan Device Evaluation support), an EU4Health project in which ERN eUROGEN was a consortium partner,...
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ERN eUROGEN Project Review: Positive Assessment
25 August 2026ERN eUROGEN has successfully passed a Project Review of its current four-year Direct Operational Grant (2023-2027), which supports the...
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Cross-ERN Publication: Crisis Preparedness for Rare Disease Patients
25 August 2026A new ‘Viewpoint’ published in The Lancet Regional Health – Europe looks at how the 24 European Reference Networks...
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Transition Guidelines for Rare Uro-Recto-Genital Conditions
29 July 2026ERN eUROGEN has published Transition Care for Individuals with Rare Uro-Recto-Genital Conditions: A Lifelong, Patient-Centered Approach, a new guidance...
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ERN eUROGEN: Rare Barometer Mental Health Survey Results
22 July 2026Between September and December 2025, 117 people living with rare and complex uro-recto-genital conditions, from 22 European countries, took...
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The Next EU Budget and Future ERN Funding
22 July 2026Negotiations for the next long-term European Union (EU) budget, the 2028–2034 Multiannual Financial Framework (MFF), are now in a...
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ERN eUROGEN at the ESPU: Registry Growth & Research Connections
25 June 2026From Wednesday 17 to Saturday 20 June 2026, the 36th European Society for Paediatric Urology (ESPU) Congress took place...
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ERN eUROGEN at the 1st UEMS Congress: Highlighting Rare Diseases
25 June 2026On Saturday, 30 May 2026, the first Congress of the European Union of Medical Specialists (UEMS) took place in...
