News

ERN eUROGEN has successfully passed a Project Review of its current four-year Direct Operational Grant (2023-2027), which supports the...

A new ‘Viewpoint’ published in The Lancet Regional Health – Europe looks at how the 24 European Reference Networks...

ERN eUROGEN has published Transition Care for Individuals with Rare Uro-Recto-Genital Conditions: A Lifelong, Patient-Centered Approach, a new guidance...

Between September and December 2025, 117 people living with rare and complex uro-recto-genital conditions, from 22 European countries, took...

Negotiations for the next long-term European Union (EU) budget, the 2028–2034 Multiannual Financial Framework (MFF), are now in a...

From Wednesday 17 to Saturday 20 June 2026, the 36th European Society for Paediatric Urology (ESPU) Congress took place...

On Saturday, 30 May 2026, the first Congress of the European Union of Medical Specialists (UEMS) took place in...

VACTERL Visionaries is a new UK-based resource created by adults living with VACTERL Association, for adults living with VACTERL Association...

June 2026 marks five years since CureforU (a global monthly case discussion platform for rare and complex paediatric colorectal...

In May 2026, ERN eUROGEN (rare uro-recto-genital diseases and complex conditions) and ERN GENTURIS (rare genetic tumour risk syndromes)...