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ERN eUROGEN: Rare Barometer Mental Health Survey Results
22 July 2026Between September and December 2025, 117 people living with rare and complex uro-recto-genital conditions, from 22 European countries, took...
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The Next EU Budget and Future ERN Funding
22 July 2026Negotiations for the next long-term European Union (EU) budget, the 2028–2034 Multiannual Financial Framework (MFF), are now in a...
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ERN eUROGEN at the ESPU: Registry Growth & Research Connections
25 June 2026From Wednesday 17 to Saturday 20 June 2026, the 36th European Society for Paediatric Urology (ESPU) Congress took place...
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ERN eUROGEN at the 1st UEMS Congress: Highlighting Rare Diseases
25 June 2026On Saturday, 30 May 2026, the first Congress of the European Union of Medical Specialists (UEMS) took place in...
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Introducing VACTERL Visionaries: A New Support Website
15 June 2026VACTERL Visionaries is a new UK-based resource created by adults living with VACTERL Association, for adults living with VACTERL Association...
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Five years of CureforU: Global Collaboration on Rare Paediatrics
15 June 2026June 2026 marks five years since CureforU (a global monthly case discussion platform for rare and complex paediatric colorectal...
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EC Visit to Radboudumc: Showcasing ERN Excellence & Collaboration
28 May 2026In May 2026, ERN eUROGEN (rare uro-recto-genital diseases and complex conditions) and ERN GENTURIS (rare genetic tumour risk syndromes)...
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ERN eUROGEN Strategic Board Meeting 2026: Report Now Available
23 April 2026The ERN eUROGEN Strategic Board Meeting took place on 26–27 February 2026 at the Radboudumc Experience Center in Nijmegen,...
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Anorectal Malformations: The Importance of Urological Surveillance
23 April 2026This article by ERN eUROGEN ePAG Representatives Kate Tyler and Dalia Aminoff reflects the presentation they delivered during the ERN...
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Ukraine: Research on Chornobyl-Related Birth Defects 40 Years On
23 April 2026ERN eUROGEN supports capacity building and knowledge sharing with Ukrainian healthcare providers and authorities through multilingual webinars, clinical guideline...
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