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ERN eUROGEN at the ESPU: Registry Growth & Research Connections
25 June 2026From Wednesday 17 to Saturday 20 June 2026, the 36th European Society for Paediatric Urology (ESPU) Congress took place...
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ERN eUROGEN at the 1st UEMS Congress: Highlighting Rare Diseases
25 June 2026On Saturday, 30 May 2026, the first Congress of the European Union of Medical Specialists (UEMS) took place in...
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Introducing VACTERL Visionaries: A New Support Website
15 June 2026VACTERL Visionaries is a new UK-based resource created by adults living with VACTERL Association, for adults living with VACTERL Association...
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Five years of CureforU: Global Collaboration on Rare Paediatrics
15 June 2026June 2026 marks five years since CureforU (a global monthly case discussion platform for rare and complex paediatric colorectal...
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EC Visit to Radboudumc: Showcasing ERN Excellence & Collaboration
28 May 2026In May 2026, ERN eUROGEN (rare uro-recto-genital diseases and complex conditions) and ERN GENTURIS (rare genetic tumour risk syndromes)...
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ERN eUROGEN Strategic Board Meeting 2026: Report Now Available
23 April 2026The ERN eUROGEN Strategic Board Meeting took place on 26–27 February 2026 at the Radboudumc Experience Center in Nijmegen,...
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Anorectal Malformations: The Importance of Urological Surveillance
23 April 2026This article by ERN eUROGEN ePAG Representatives Kate Tyler and Dalia Aminoff reflects the presentation they delivered during the ERN...
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Ukraine: Research on Chornobyl-Related Birth Defects 40 Years On
23 April 2026ERN eUROGEN supports capacity building and knowledge sharing with Ukrainian healthcare providers and authorities through multilingual webinars, clinical guideline...
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New Publication Celebrates ERNs as Flagship Initiative
22 April 2026A comprehensive review published in the Orphanet Journal of Rare Diseases documents the evolution and impact of the European Reference...
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2026 Call for Affiliated Partners: Opportunity to join the ERNs
20 April 2026The European Commission has opened a call for Affiliated Partners within the European Reference Networks. This is an opportunity...
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