4th ERN Conference – Brussels, 21 & 22 November 201828 November 2018
Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference...0
International Children’s Continence Society (ICCS) 2018 Annual Meeting31 October 2018
The International Children’s Continence Society (ICCS) 2018 Annual Meeting was held in Rome from 26-29 September and covered almost...
The European Joint co-fund Programme for Rare Diseases (EJP-RD) approved3 October 2018
Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To...
INNOVCare Project: Results demonstrate need for integrated care for rare disease patients20 September 2018
The results of the INNOVCare Project (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) were announced at...
ePAG Steering Committee20 September 2018
From 13-14 September, the ePAG Steering Committee met in Brussels, with Dalia Aminoff and Serena Bartezzati representing eUROGEN. Birute...
EU Funding News17 July 2018
New call for proposals A new call for ERNs to apply to the Connecting European Facilities Fund (CEF) was...
Genetic Alliance UK Event, Houses of Parliament, London17 July 2018
Genetic Alliance UK (the national charity alliance of over 200 patient organisations working to improve the lives of patients...
ERN Coordinators Group (ERN CG) Meeting, Brussels17 July 2018
Prof Wout Feitz (WS1 Lead) (NL) and Michelle Battye (Manager) (UK) represented eUROGEN at the ERN CG meeting on...
2nd Annual eUROGEN Strategic Board Meeting, Noordwijk17 July 2018
We held our 2nd Annual Strategic Board meeting in Noordwijk from 11-12 June 2018, with 43 attendees representing our...
eUROGEN: Improving lives for patients with rare diseases18 March 2018
The European Reference Network (ERN) eUROGEN is already the most proactive of the 24 ERNs approved and funded by...