Patients are at the heart of ERN eUROGEN. A fundamental principle of all European Reference Networks is that patients actively participate as key partners in their care, working alongside clinicians and researchers to set priorities, shape decisions, and improve outcomes for those with rare and complex uro-recto-genital conditions. Within ERN eUROGEN, this partnership is carried out chiefly through our European Patient Advocacy Group (ePAG), where people with lived experience and patient organisation representatives work as equal partners across our strategy, guidelines, registries, training, and research. ERN eUROGEN is committed to the EURORDIS Patient Partnership Framework for ERNs. We believe that patients and clinicians are stronger when working together, and we embed this principle across all our activities. We assess our collaboration through the Patient Partnership in ERNs surveys, gathering feedback from both ePAG members and the leadership team. This ensures that we continue to learn, celebrate successes, and address challenges together.Patient Partnership
Our Commitment to Patient Partnership
