This Expertise Area (EA) relates to patients transitioning from paediatric care under Workstream 1: Rare congenital uro-recto-genital anomalies once they reach adulthood. Adult uro-recto-genital reconstructive surgery is a specialised surgical subspecialty that focuses on restoring function and normal anatomy to the urinary tract and reproductive system of adult patients who have congenital abnormalities, acquired conditions, or injuries that affect these systems. This type of surgery involves complex procedures to repair, reconstruct, or replace parts of the urinary and genital organs, including the kidneys, ureters, bladder, urethra, prostate, and genitalia. The goal of adult uro-recto-genital reconstructive surgery is to improve patients’ quality of life by addressing problems such as urinary incontinence, bladder dysfunction, urethral strictures, uro-recto-genital malformations, and sexual dysfunction. You can find out which of our Healthcare Providers have expertise in this area on our Workstreams & Expertise page. His clinical and academic work focuses on congenital urogenital conditions, complex urinary tract reconstruction, and lifelong care from childhood through transition into adulthood. He is a Fellow of the European Academy of Paediatric Urology, Program Director of the UEMS-certified Paediatric Urology Training Programme in Mannheim, and Associate Editor-in-Chief of the Journal of Pediatric Urology. He has also contributed extensively to European and German clinical guideline development. ERN eUROGEN has developed a document on Transition Care for Individuals with Rare Uro-Recto-Genital Conditions: A Lifelong, Patient-Centered Approach, which sets out how the transition from paediatric to adult healthcare should be organised for people with rare uro-recto-genital conditions. This is available from our guidelines page.Adult Uro-Recto-Genital Reconstructive Surgery (ERN eUROGEN EA 2.6)
Expertise Area Coordinator: Raimund Stein
Professor Raimund Stein is Director of the Centre for Paediatric, Adolescent and Reconstructive Urology at University Medical Centre Mannheim, Germany. He trained in urology at Johannes Gutenberg University Mainz and completed a DFG-funded research fellowship at the Children’s Hospital of Philadelphia. Before moving to Mannheim in 2015, he was Professor and Head of Paediatric Urology at University Medical Centre Mainz.Vice-EAC: vacant
Guidelines
Adult Uro-Recto-Genital Reconstructive Surgery
