This Expertise Area (EA) relates to patients transitioning from paediatric care under Workstream 1: Rare congenital uro-recto-genital anomalies once they reach adulthood. Adult uro-recto-genital reconstructive surgery is a specialised surgical subspecialty that focuses on restoring function and normal anatomy to the urinary tract and reproductive system of adult patients who have congenital abnormalities, acquired conditions, or injuries that affect these systems. This type of surgery involves complex procedures to repair, reconstruct, or replace parts of the urinary and genital organs, including the kidneys, ureters, bladder, urethra, prostate, and genitalia. The goal of adult uro-recto-genital reconstructive surgery is to improve patients’ quality of life by addressing problems such as urinary incontinence, bladder dysfunction, urethral strictures, uro-recto-genital malformations, and sexual dysfunction. You can find out which of our Healthcare Providers have expertise in this area on our Workstreams & Expertise page. ERN eUROGEN has developed a document on Transition Care for Individuals with Rare Uro-Recto-Genital Conditions: A Lifelong, Patient-Centered Approach, which sets out how the transition from paediatric to adult healthcare should be organised for people with rare uro-recto-genital conditions. This is available from our guidelines page.Adult Uro-Recto-Genital Reconstructive Surgery (ERN eUROGEN EA 2.6)
Expertise Area Coordinator: Raimund Stein
Vice-EAC: vacant
Guidelines
