On Tuesday 9th February at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will be presented by Vijay Sangar, Professor of Urology at the... On Tuesday 12th January at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will be presented by assistant professor Sofia Sjöström from The Queen... In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the European Commission is funding a training programme in intensive care... In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have highlighted the detrimental health implications of a “no deal” Brexit... The tenth anniversary special online edition of the EURORDIS Black Pearl Awards will take place during the evening of Wednesday, 24 February 2021. The EURORDIS Black Pearl Awards celebrate... The Executive Summary from the 10th European Conference on Rare Diseases and Orphan Products (held 14-15 May 2020) is now available online. This interactive document compiles the key takeaways... The European Rare Disease Research Coordination and Support Action (ERICA) Project received a positive evaluation for an H2020 grant to establish a structural framework in support of the research... The European Commission is funding an exchange programme to stimulate knowledge sharing and collaboration between healthcare professionals in the ERNs. Over two years, three different rounds of exchanges will... EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease in uncertainty regarding their diagnosis, care and treatment. The recommendations...Latest News
eUROGEN Webinar: Reconstructive surgery following penile cancer
eUROGEN Webinar: Posterior Urethral Valves – Treatment and follow-up from a pediatric urological perspective
Training Programme in Intensive Care Skills
Brexit – UK clinicians Warn of No-Deal Consequences for Patients
EURORDIS Black Pearl Awards
ECRD Meeting – Executive Summary & Special Supplement
The ERICA Project: ERNs Joining Forces on Research and Innovation
ERN Mobility / Exchange Programme
EURORDIS Vision for a Mature ERN System by 2030
