Support Actions for Ukrainian Spina Bifida Patients
Posted on 24 March 2023 in News
ERN eUROGEN is collaborating with the International Federation for Spina Bifida and Hydrocephalus (IFSBH) and has signed a Memorandum of Understanding with ONMI-Net Ukraine (a network of over 20 children’s hospitals in Ukraine) to help children with rare disorders and their families.
The worsening humanitarian needs in Ukraine are escalating the plight of special children with special needs, so OMNI-Net recently launched the “Help Us Help Them” initiative to raise funds for these children and provide a glimmer of hope. In particular, proceeds will help children who need catheters and cerebral shunts.
These short videos show the campaign’s goals in ameliorating the impact of war:
- Video 1 – Special Children in Ukraine Need You!
- Video 2 – Please Help Ukrainian Children with Disabilities
- Video 3 – About OMNI Initiative – Help Disabled Ukrainian Children