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ECRD Meeting – Executive Summary & Special Supplement
21 December 2020The Executive Summary from the 10th European Conference on Rare Diseases and Orphan Products (held 14-15 May 2020) is...
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The ERICA Project: ERNs Joining Forces on Research and Innovation
21 December 2020The European Rare Disease Research Coordination and Support Action (ERICA) Project received a positive evaluation for an H2020 grant...
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ERN Mobility / Exchange Programme
21 December 2020The European Commission is funding an exchange programme to stimulate knowledge sharing and collaboration between healthcare professionals in the...
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EURORDIS Vision for a Mature ERN System by 2030
21 December 2020EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease...
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ERN Coordination Group Meeting
21 December 2020The ERN Coordinators Group (ERN CG) met with the European Commission on 27 November 2020 with a very full...
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EJP RD Call: Innovation Projects in Clinical Trials Methodologies in Limited Populations
21 December 2020The EJP RD internal call for innovation projects in clinical trials methodologies in limited populations opened on 7 December 2020...
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eUROGEN Webinar: Newborn management – Female patient
3 December 2020On Tuesday 15th December at 18:00 CET, we will be continuing our series of eUROGEN webinars. This is the...
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EC ERN Mobility & Exchange Programme
10 November 2020The first meeting regarding the European Comission’s ‘ERN Capacity & Knowledge Sharing Through Short Term Mobility & Exchanges of...
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ERN IT Advisory Group: 8th meeting
10 November 2020The 8th meeting of the European Reference Networks IT Advisory Group was held on 8 October and attended by Darren...
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Brexit and the ERNs
10 November 2020There is still no clear picture of how UK healthcare providers, clinical experts and patient organisations involved in the...
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