Hi everyone! My name is Isabel Hageman and in September 2021 I started work as the ERN eUROGEN registry assistant, assisting Loes van der Zanden, the registry coordinator, in the setup of the ERN eUROGEN registry.
I am currently a PhD student at the Department of Pediatric Surgery at Radboudumc and the Murdoch Children’s Research Institute in Melbourne, Australia, as part of a research collaboration between the institutes. My PhD is on the setup of patient registries for rare diseases, specifically anorectal malformations, which coincidentally (or not so coincidentally!) are also included in the ERN eUROGEN registry.
I am relatively new to this field of research, as I only graduated as a medical doctor and clinical researcher from Utrecht University this year. During my studies, I mostly conducted clinical database research in the field of general pediatric surgery, and I have spent a year in Australia researching perioperative opioid use in children. For this project I have designed and built a patient registry, exploring the challenges as well as the rewards of such a clinical database.
As both a doctor and a researcher, I look forward to applying my clinical knowledge and using my database research experience to help set up the ERN eUROGEN registry. I am excited and honoured to join this dedicated team of experts in moving towards an innovative, international, collaborative field of medical research.