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Reviewed & Recommended: ERN eUROGEN Book
30 May 2025We’re delighted to share that Rare and Complex Urology, the first book published by ERN eUROGEN, has received two glowing...
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ERN Coordinators Group Meeting in Rome, May 2025
30 May 2025The 22nd meeting of the 24 ERN Coordinators with the European Commission’s DG SANTE team was held at the Italian Ministry...
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Vaginal Replacement in ARM: Consensus Meeting Held
28 April 2025A Consensus Meeting on Vaginal Replacement in Children with Anorectal Malformations (ARM) took place on 24–25 April 2025 in...
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Shaping the Future: Towards an EU Action Plan on Rare Diseases
24 April 2025On 10 April 2025, the European Economic and Social Committee (EESC), the Polish Ministry of Health, and the Medical...
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DeCODe Workshop: Advancing Paediatric Device Development
24 April 2025On 8–9 April 2025, the DeCODe consortium convened a focused workshop in Brussels, bringing together key stakeholders to advance...
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Patient Empowerment: A Journey from Isolation to Advocacy
4 April 2025Together, We Are Stronger: Empowering Adults with Rare Conditions By adapting work by patient representatives from TOFS, Max’s Trust,...
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Rare Barometer Survey: Impact of Rare Uro-Recto-Genital Diseases
27 March 2025The findings of the latest Rare Barometer survey shed light on the real-life challenges faced by people living with...
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Session on Rare and Complex Urology at EAU25
27 March 2025On Friday, 21 March, ERN eUROGEN hosted a dedicated Thematic Session at the annual European Association of Urology congress...
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ERN eUROGEN Book – Rare & Complex Urology
22 March 2025On Rare Disease Day 2024, ERN eUROGEN, the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions,...
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Expert Meeting on Vaginal Replacement in ARM
17 March 2025We are pleased to announce that the Expert Meeting on Vaginal Replacement in Children with ARM will take place...
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