News

📄 Preliminary report available here 🎥 Summary video of findings available here 📋 If you have been treated for...

A new pan-European study examining the management of Hirschsprung’s disease (HSCR) has been published in Acta Paediatrica, offering valuable...

The detailed report (along with links to presentation slides and additional resources) of the 2024 ERN eUROGEN Strategic Board...

The ERN eUROGEN Coordination Team is proud to celebrate the academic achievement of Loes Oomen, former ERN eUROGEN Clinical...

Prof. Peter Mulders, ERN eUROGEN Coordinator, and Michelle Battye, ERN eUROGEN Programme Manager, attended the ERICA ERN Research Conference, which...

A significant new paper, “Complex Decision Making for Individual Patients With Penile Cancer: Benchmarking Divergent Practices in European High-Volume...

The European Rare Diseases Research Alliance (ERDERA) Joint Transnational Call (JTC) 2025 is now open! Through this funding scheme,...

ERN eUROGEN is pleased to announce the successful transition to the new version of the Clinical Patient Management System...

ERN Evaluation Results Report The recently published “ERN Evaluation Results Report – Independent Evaluations of European Reference Networks and...

On 29 November 2024 in Budapest, the European Economic and Social Committee (EESC) conference, ‘For an EU Commitment to Tackling...