-
ERN eUROGEN Book – Rare & Complex Urology
22 March 2025On Rare Disease Day 2024, ERN eUROGEN, the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions,...
0 -
Expert Meeting on Vaginal Replacement in ARM
17 March 2025We are pleased to announce that the Expert Meeting on Vaginal Replacement in Children with ARM will take place...
-
Celebrating Rare Disease Day 2025
28 February 2025Today, 28 February 2025, we join the global rare disease community in celebrating Rare Disease Day, a vital occasion to...
-
World Orphan Drug Congress Europe, 27-29 October
13 February 2025ERN eUROGEN is an official supporting partner of the World Orphan Drug Congress Europe, the largest and most established...
-
New Clinical Practice Guidelines for Spinal Dysraphism
12 February 2025ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the...
-
Advancing ERN Registries: Insights from the ERICA & c4c Joint Workshop
7 February 2025The Joint Workshop of ERICA and c4c (conect 4 children) took place on 4–5 February 2025 at the Marsilius Kolleg...
-
ERN eUROGEN Resources Available for Anorectal Malformations
6 February 2025ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, is pleased to announce that a...
-
Paediatric & Orphan Devices: Call for Support Open
4 February 2025The Development of Child and Orphan Device (DeCODe) project, co-funded by the European Commission under EU4Health, has opened a call for...
-
Penile Cancer: Insights from a Patient-Led Survey
4 February 2025📄 Preliminary report available here 🎥 Summary video of findings available here 📋 If you have been treated for...
-
New Cross-ERN Study on Hirschsprung’s Disease Management
29 January 2025A new pan-European study examining the management of Hirschsprung’s disease (HSCR) has been published in Acta Paediatrica, offering valuable...
News
