-
Introducing VACTERL Visionaries: A New Support Website
15 June 2026VACTERL Visionaries is a new UK-based resource created by adults living with VACTERL Association, for adults living with VACTERL Association...
0 -
Five years of CureforU: Global Collaboration on Rare Paediatrics
15 June 2026June 2026 marks five years since CureforU (a global monthly case discussion platform for rare and complex paediatric colorectal...
-
EC Visit to Radboudumc: Showcasing ERN Excellence & Collaboration
28 May 2026In May 2026, ERN eUROGEN (rare uro-recto-genital diseases and complex conditions) and ERN GENTURIS (rare genetic tumour risk syndromes)...
-
ERN eUROGEN Strategic Board Meeting 2026: Report Now Available
23 April 2026The ERN eUROGEN Strategic Board Meeting took place on 26–27 February 2026 at the Radboudumc Experience Center in Nijmegen,...
-
Anorectal Malformations: The Importance of Urological Surveillance
23 April 2026This article by ERN eUROGEN ePAG Representatives Kate Tyler and Dalia Aminoff reflects the presentation they delivered during the ERN...
-
Ukraine: Research on Chornobyl-Related Birth Defects 40 Years On
23 April 2026ERN eUROGEN supports capacity building and knowledge sharing with Ukrainian healthcare providers and authorities through multilingual webinars, clinical guideline...
-
New Publication Celebrates ERNs as Flagship Initiative
22 April 2026A comprehensive review published in the Orphanet Journal of Rare Diseases documents the evolution and impact of the European Reference...
-
2026 Call for Affiliated Partners: Opportunity to join the ERNs
20 April 2026The European Commission has opened a call for Affiliated Partners within the European Reference Networks. This is an opportunity...
-
ERN eUROGEN at EAU26: Bringing Rare Disease Expertise to London
25 March 2026The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided...
-
ERN eUROGEN Strategic Board Meeting 2026: Meeting Summary
23 March 2026The ERN eUROGEN Strategic Board Meeting took place on 26–27 February 2026 at the Radboudumc Experience Center in Nijmegen,...
News
