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ERDERA: European Partnership Opens a New Era in Rare Disease Research
13 September 2024The European Rare Diseases Research Alliance (ERDERA) will launch this September. With an estimated budget of 380 million euros, it aims to improve the...
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DeCODe Orphan and Paediatric Medical Device Project Launched
13 September 2024The EC-funded DeCODe consortium held its kick-off meeting in Brussels on 9-10 September 2024. ERN eUROGEN is proud to...
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EAU’s “An Urge To Act” Campaign Tackles Incontinence
10 September 2024ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, proudly supports the European Association of...
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World Health Assembly Resolution on Rare Diseases Webinar
10 September 2024ERN eUROGEN joined the recent public webinar, *Towards a WHA Resolution on Rare Diseases 2025*, held on 30 August...
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ERN eUROGEN Results: Newborn Screening Survey
12 July 2024Last year, Rare Barometer asked ERN eUROGEN to assist with their Newborn Screening (NBS) Survey by providing a validated...
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EJP RD Publication: Building the Rare Diseases Research Ecosystem
4 July 2024We are pleased to share the publication of a new article highlighting the past five years of the European...
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ECRD 2024: ERN eUROGEN Involved Regarding Highly Specialised Care
14 June 2024Prof Ivo de Blaauw, ERN eUROGEN Sub-Coordinator, spoke in the session “Achieving Full Reach: Overcoming The Last Challenges To...
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ERN Coordinators Group Meeting, Luxembourg – 21 May 2024
14 June 2024The 20th meeting of the ERN 24 Coordinators with the European Commission’s DG SANTE team was held in person...
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ERN eUROGEN Transition: Welcome to New Coordinators
14 June 2024Due to Prof. Wout Feitz’s retirement on 8 May 2024, it became necessary to identify a new Coordinator for...
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New Version of Clinical Patient Management System Released
14 June 2024The new desktop version of the Clinical Patient Management System, CPMS 2.0, was released on 31 May 2024, with...
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