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IRDiRC Task Force Publishes Drug Repurposing Guidebook
24 October 2023The commentary ‘IRDiRC Drug Repurposing Guidebook: making better use of existing drugs to tackle rare diseases’ has been published...
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Report: ERN eUROGEN Strategic Board Meeting 2023
12 October 2023The ERN eUROGEN annual Strategic Board Meeting was held in Nijmegen-Lent (NL) from 11-12 September 2023, with attendees representing...
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World Mental Health Day 2023: Actions for Rare Diseases
10 October 2023ERN eUROGEN joined the first meeting of the new EURORDIS Mental Health & Wellbeing Partnership Network which was launched...
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EJP RD: Free Online Courses on Rare Diseases
9 October 2023Two free Massive Open Online Courses (MOOCs) for individuals with a keen interest in rare diseases research are currently available...
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ERN eUROGEN Differences of Sex Development Information Video
6 October 2023ERN eUROGEN has produced the video below (in cooperation with Erasmus MC and funded by the European Union) to...
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Open Letter: EU – Please Stand By The ERNs
4 October 2023ERN eUROGEN has co-signed an open letter in which the ERN Network Coordinators and people living with a rare...
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ERN eUROGEN Registry Patient Information Video
29 September 2023ERN eUROGEN has produced the video below explaining the concept of the ERN eUROGEN registry for patients. We hope this...
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EU Continence Health Summit & Manifesto: ERN eUROGEN on Panel
28 September 2023The first EU Continence Health Summit is taking place on 8 November in Brussels (BE), with stakeholders coming together...
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Application for 2023-2027 Funding Resubmitted
27 September 2023ERN eUROGEN, the European Reference Network (ERN) for rare urogenital diseases and complex conditions, has successfully resubmitted its application...
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In Memoriam: Linda Cardozo, Former ERN eUROGEN Representative
25 September 2023ERN eUROGEN was very saddened to hear the news of the passing of Professor Linda Cardozo OBE. On behalf...