The 2020 CEF Telecom eHealth call opened on 30 June 2020 and makes an indicative €5 million of funding available in this area. ERN eUROGEN will be putting in an application before the...

A new Addendum to the ERN Board Statement has been drafted by the working group on “Legal & Ethical issues and relations with Stakeholders” (ERN LES WG) to clarify...

ERN eUROGEN’s two applicants successfully received funding for an ERN fellowship exchange in the first ‘EJP RD ERN RD Research Mobility Fellowship Call’, receiving excellent feedback from the panel....

The ERN Project Managers (PMs) held virtual meetings on 15 and 23 July 2020, with the kind support of the DG SANTE ERN team. Two shorter meetings were held...

The ERN Guidelines Consortium training programme for ERN Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) is planned to start by February 2021 and will be tailored to...

To further encourage the development of treatments for rare diseases, the European Medicines Agency (EMA) will waive all fees for scientific advice for academia developing orphan medicines. The academic sector...

by Serena Bartezzati, ePAG Representative Knowledge generation and dissemination is a key objective of the ERNs.  The Working Group (WG) on Knowledge Generation aims to create a common ERN...

ERN eUROGEN held their annual Strategic Board Meeting using virtual conferencing on 12 June 2020, despite the unprecedented global situation with the COVID-19 pandemic.  Over 50 network members attended,...