During these difficult and unprecedented times, ERN eUROGEN hopes that all of our patients, collaborators, and their families can manage with their health requirements as best as possible, and wishes them the strength needed...

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event. ECRD 2020 will take place uniquely online from 14-15 May. Registration IS OPEN until...

The call for new members to apply to the existing European Reference Networks was opened in 2019 and the review and assessment of the received applications are ongoing.  However,...

The Withdrawal Agreement as agreed between the parties in October 2019 entered into force on 1 February 2020, with the following implications: UK healthcare providers can continue participating in...

In a meeting held in Brussels on 6 February 2020, the European Commission (EC) introduced a new project to provide technical assistance to the ERNs for the development, appraisal...

  Patients, healthcare providers, charities, representation groups and more collaborated to raise awareness of rare diseases on Saturday 29 February as part of the annual Rare Disease Day event,...

The eUROGEN Coordination Team are actively working with the European Commission to agree the Grant Agreement to set up the eUROGEN patient registry (our submitted proposal is on the...

In the call opened by the EC in 2019, ERN eUROGEN received a total of 31 new applications to join the network as full members. The ERNs are required...