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The 24 ERN Coordinators meet regularly with the European Commission (EC) to drive forward the work of the ERNs, and 4 October 2022 saw the first face-to-face ERN Coordinators...

Following the covid-19 pandemic and two years of online-only meetings, the ERN eUROGEN Coordination Team was delighted to hold an in-person Strategic Board meeting from 13-14 September 2022, in Nijmegen-Lent (NL)....

Darren Shilhan, ERN eUROGEN Lead IT & Data Performance Analyst, writes: On 1 September 2022, the process to evaluate the ERNs and their Full Members will officially begin. This...

Sharing Knowledge on Treatment for Children with Anorectal Malformation: A Successful ERN Exchange Programme Group Visit Dr. med. Eberhard Schmiedeke, from the Kinderchirurgie team at Klinikum Bremen-Mitte (DE), writes: More than 20...

“We at the World Health Organization are on your side,” said Rüdiger Krech, WHO Director of Health Promotion, giving the keynote address at the Rare Diseases International informal side-event to the...

ECRD2022 was among our most inclusive and sustainably responsible conferences to date! It took place online from 27 June – 1 July 2022 (spread over five half days), providing...

The ERICA 2nd General Assembly (a hybrid meeting in Bologna, Italy and online) provided three productive days full of interactive sessions from 20-22 June 2022, ERN eUROGEN was represented...

by Marija Miletić I took place in an EJP RD Research Mobility Fellowship, which was challenging yet rewarding; an unforgettable experience in my life! I learned about the potential...

Do you have Horizon 2020 and/or Horizon Europe funding? Beneficiaries are invited to publish their work on Open Research Europe, the open access platform funded by the European Commission....