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In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the European Commission is funding a training programme in intensive care...

In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have highlighted the detrimental health implications of a “no deal” Brexit...

The tenth anniversary special online edition of the EURORDIS Black Pearl Awards will take place during the evening of Wednesday, 24 February 2021. The EURORDIS Black Pearl Awards celebrate...

The Executive Summary from the 10th European Conference on Rare Diseases and Orphan Products (held 14-15 May 2020) is now available online. This interactive document compiles the key takeaways...

The European Rare Disease Research Coordination and Support Action (ERICA) Project received a positive evaluation for an H2020 grant to establish a structural framework in support of the research...

The European Commission is funding an exchange programme to stimulate knowledge sharing and collaboration between healthcare professionals in the ERNs. Over two years, three different rounds of exchanges will...

EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease in uncertainty regarding their diagnosis, care and treatment. The recommendations...

The ERN Coordinators Group (ERN CG) met with the European Commission on 27 November 2020 with a very full agenda.  We strongly recommend that network members look at the...

The EJP RD internal call for innovation projects in clinical trials methodologies in limited populations opened on 7 December 2020 and will close on 3 March 2021.  An “Information/Networking Event”...