The results of the H-CARE survey (carried out by EURORDIS) show that at European level, access to the expertise of ERN healthcare providers is very beneficial for rare disease...

The EC is funding a programme of training of healthcare professionals in intensive care skills to support frontline clinicians dealing with COVID-19. Training is free of charge and available for every...

We last gave a thorough update on our activities at our annual Strategic Board Meeting held virtually in June, so felt it was time to give all interested parties...

Together with the European Association of Urology, ERN eUROGEN ran a webinar on Thursday 3 September on COVID-19 and urology. A recording of this is now available on the EC website and features presentations from...

During these difficult and unprecedented times, ERN eUROGEN hopes that all of our patients, collaborators, and their families can manage with their health requirements as best as possible, and wishes them the strength needed...

The ERN Working Group on Legal & Ethical issues and relations with Stakeholders (ERN LES WG) has developed and now finalised two documents relating to conflicts of interests and...

The aim of the ERN eUROGEN Registry is to build a patient-centred and interoperable registry hub for rare urorectogenital diseases and conditions. This registry will assist the EC in...