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New Publication Celebrates ERNs as Flagship Initiative
22 April 2026A comprehensive review published in the Orphanet Journal of Rare Diseases documents the evolution and impact of the European Reference...
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2026 Call for Affiliated Partners: Opportunity to join the ERNs
20 April 2026The European Commission has opened a call for Affiliated Partners within the European Reference Networks. This is an opportunity...
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ERN eUROGEN at EAU26: Bringing Rare Disease Expertise to London
25 March 2026The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided...
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ERN eUROGEN Strategic Board Meeting 2026: Meeting Summary
23 March 2026The ERN eUROGEN Strategic Board Meeting took place on 26–27 February 2026 at the Radboudumc Experience Center in Nijmegen,...
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Incontinence & Coexisting Conditions: Not Just a Urology Problem
20 March 2026Urinary incontinence (UI) is not just a urology problem. A compelling new publication from the European Association of Urology...
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DG SANTE Launches 2026 ERN Communications Package
20 March 2026On Rare Disease Day 2026 (28 February), the European Commission’s Directorate-General for Health and Food Safety (DG SANTE) released...
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ERN eUROGEN at the Transition in Rare Diseases Workshop, Ghent
20 March 2026On 27–28 February 2026, ERN eUROGEN was represented at the first ERN-wide Transition in Rare Diseases Workshop, held in...
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Rare Disease Day 2026: ERN eUROGEN ePAG Voices
16 February 2026On 28 February 2026, the rare disease community comes together to mark Rare Disease Day — a global movement...
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ERN Coordinators Group Meeting, 10–11 February 2026
16 February 2026The ERN Coordinators Group (CG) met on 10–11 February 2026 in a hybrid format, with both in-person and online...
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What’s Next After HLM-RARE 2025? Key Milestones for 2026
22 January 2026Following the High-Level Meeting on Rare Diseases (HLM Rare 2025) held in Brussels on 9–11 December 2025, which we previously...
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