-
Clinical Patient Management System: Mobile Apps Now Available
19 June 2025Today, 19 June 2025, marks an exciting new chapter for the European Reference Networks with the public launch of...
0 -
ERDERA Networking Support Scheme: Call Open
30 May 2025The ERDERA Networking Support Scheme (NSS) is now open for applications! This funding opportunity is a valuable resource for...
-
Horizon Europe Work Programme 2025: Calls Open
30 May 2025The European Commission has released the Horizon Europe Work Programme 2025, investing €7.3 billion to support research and innovation across...
-
Reviewed & Recommended: ERN eUROGEN Book
30 May 2025We’re delighted to share that Rare and Complex Urology, the first book published by ERN eUROGEN, has received two glowing...
-
ERN Coordinators Group Meeting in Rome, May 2025
30 May 2025The 22nd meeting of the 24 ERN Coordinators with the European Commission’s DG SANTE team was held at the Italian Ministry...
-
Vaginal Replacement in ARM: Consensus Meeting Held
28 April 2025A Consensus Meeting on Vaginal Replacement in Children with Anorectal Malformations (ARM) took place on 24–25 April 2025 in...
-
Shaping the Future: Towards an EU Action Plan on Rare Diseases
24 April 2025On 10 April 2025, the European Economic and Social Committee (EESC), the Polish Ministry of Health, and the Medical...
-
DeCODe Workshop: Advancing Paediatric Device Development
24 April 2025On 8–9 April 2025, the DeCODe consortium convened a focused workshop in Brussels, bringing together key stakeholders to advance...
-
Patient Empowerment: A Journey from Isolation to Advocacy
4 April 2025Together, We Are Stronger: Empowering Adults with Rare Conditions By adapting work by patient representatives from TOFS, Max’s Trust,...
-
Rare Barometer Survey: Impact of Rare Uro-Recto-Genital Diseases
27 March 2025The findings of the latest Rare Barometer survey shed light on the real-life challenges faced by people living with...
News
