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World Orphan Drug Congress Europe, 27-29 October
13 February 2025ERN eUROGEN is an official supporting partner of the World Orphan Drug Congress Europe, the largest and most established...
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New Clinical Practice Guidelines for Spinal Dysraphism
12 February 2025ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the...
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Advancing ERN Registries: Insights from the ERICA & c4c Joint Workshop
7 February 2025The Joint Workshop of ERICA and c4c (conect 4 children) took place on 4–5 February 2025 at the Marsilius Kolleg...
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ERN eUROGEN Resources Available for Anorectal Malformations
6 February 2025ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, is pleased to announce that a...
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Paediatric & Orphan Devices: Call for Support Open
4 February 2025The Development of Child and Orphan Device (DeCODe) project, co-funded by the European Commission under EU4Health, has opened a call for...
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Penile Cancer: Insights from a Patient-Led Survey
4 February 2025📄 Preliminary report available here 🎥 Summary video of findings available here 📋 If you have been treated for...
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New Cross-ERN Study on Hirschsprung’s Disease Management
29 January 2025A new pan-European study examining the management of Hirschsprung’s disease (HSCR) has been published in Acta Paediatrica, offering valuable...
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2024 ERN eUROGEN Strategic Board Meeting Report
27 January 2025The detailed report (along with links to presentation slides and additional resources) of the 2024 ERN eUROGEN Strategic Board...
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Loes Oomen: PhD Thesis on Pediatric Kidney Transplantation Care
20 January 2025The ERN eUROGEN Coordination Team is proud to celebrate the academic achievement of Loes Oomen, former ERN eUROGEN Clinical...
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ERICA ERN Research Conference for Rare Diseases
17 January 2025Prof. Peter Mulders, ERN eUROGEN Coordinator, and Michelle Battye, ERN eUROGEN Programme Manager, attended the ERICA ERN Research Conference, which...
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