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Rare Disease Day 2026: ERN eUROGEN ePAG Voices
16 February 2026On 28 February 2026, the rare disease community comes together to mark Rare Disease Day — a global movement...
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ERN Coordinators Group Meeting, 10–11 February 2026
16 February 2026The ERN Coordinators Group (CG) met on 10–11 February 2026 in a hybrid format, with both in-person and online...
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What’s Next After HLM-RARE 2025? Key Milestones for 2026
22 January 2026Following the High-Level Meeting on Rare Diseases (HLM Rare 2025) held in Brussels on 9–11 December 2025, which we previously...
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High-Level Meeting on Rare Diseases 2025: Building a Sustainable Future
15 December 2025A High-Level Meeting on Rare Diseases (HLM Rare 2025) was held in Brussels on 9–11 December 2025, bringing together...
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Results of Public Consultation Show Strong Support for ERNs
3 December 2025The European Commission has published the results of its public consultation on the next Multiannual Financial Framework (MFF), and...
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EC’s First Monitoring Report: Strong Performance by ERN eUROGEN
27 November 2025The European Commission has published the first-ever Continuous Monitoring Report for the European Reference Networks (ERNs), covering the 2023–2024...
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Final OD4RD2 Meeting Strengthens ERN–Orphanet Collaboration
27 November 2025The Orphanet Data for Rare Disease 2 (OD4RD2) project, led by Orphanet, held its final meeting on 5 and...
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Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget
6 November 2025The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan. In...
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New ERN eUROGEN Overview Video: Accessing Expertise Across Europe
30 October 2025We are pleased to share our new ERN eUROGEN overview video, “Accessing Expertise: How ERN eUROGEN Supports Rare and...
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ERN eUROGEN at the ESSIC – CONVPP Congress, 2025
30 October 2025The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP)...
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