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								New ERN eUROGEN Overview Video: Accessing Expertise Across Europe30 October 2025We are pleased to share our new ERN eUROGEN overview video, “Accessing Expertise: How ERN eUROGEN Supports Rare and... 0
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								ERN eUROGEN at the ESSIC – CONVPP Congress, 202530 October 2025The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP)... 
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								Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action30 October 2025A new publication in the Orphanet Journal of Rare Diseases highlights the urgent need for improved psychosocial support for people... 
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								Shaping the Future of Rare Disease Policy Together at ECRD 202630 October 2025ERN eUROGEN is proud to be an Associate Partner of the 13th European Conference on Rare Diseases & Orphan... 
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								 Updated ERN eUROGEN Resources for Anorectal Malformations25 September 2025ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, is pleased to announce new and... 
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								 Urology Week 2025: UTIs in Rare and Complex Urogenital Conditions22 September 2025This year’s Urology Week (22–26 September) shines a spotlight on urinary tract infections (UTIs) — one of the most... 
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								 Hans Langenhuijsen Appointed Professor of Adrenal Surgery12 September 2025ERN eUROGEN warmly congratulates Prof. Hans Langenhuijsen on his appointment as Professor of Adrenal Surgery at Radboud university medical... 
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								 ERN eUROGEN Featured in the Journal of Pediatric Urology8 September 2025We are delighted to share that ERN eUROGEN has been featured in a new review article published by the... 
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								 Revised Orphanet Classification for Spina Bifida and Other Spinal Dysraphisms14 July 2025We are pleased to share the publication of the paper “Revised Orphanet Nomenclature and Classification for Spina Bifida and... 
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								 Patients Take the Stage: Sharing Stories of Empowerment and Advocacy3 July 2025On Saturday, 28 June 2025, a group of inspiring adult patients living with VACTERL Association took to the stage... 
 
