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EC’s First Monitoring Report: Strong Performance by ERN eUROGEN
27 November 2025The European Commission has published the first-ever Continuous Monitoring Report for the European Reference Networks (ERNs), covering the 2023–2024...
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Final OD4RD2 Meeting Strengthens ERN–Orphanet Collaboration
27 November 2025The Orphanet Data for Rare Disease 2 (OD4RD2) project, led by Orphanet, held its final meeting on 5 and...
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Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget
6 November 2025The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan. In...
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New ERN eUROGEN Overview Video: Accessing Expertise Across Europe
30 October 2025We are pleased to share our new ERN eUROGEN overview video, “Accessing Expertise: How ERN eUROGEN Supports Rare and...
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ERN eUROGEN at the ESSIC – CONVPP Congress, 2025
30 October 2025The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP)...
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Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action
30 October 2025A new publication in the Orphanet Journal of Rare Diseases highlights the urgent need for improved psychosocial support for people...
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Shaping the Future of Rare Disease Policy Together at ECRD 2026
30 October 2025ERN eUROGEN is proud to be an Associate Partner of the 13th European Conference on Rare Diseases & Orphan...
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Updated ERN eUROGEN Resources for Anorectal Malformations
25 September 2025ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, is pleased to announce new and...
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Urology Week 2025: UTIs in Rare and Complex Urogenital Conditions
22 September 2025This year’s Urology Week (22–26 September) shines a spotlight on urinary tract infections (UTIs) — one of the most...
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Hans Langenhuijsen Appointed Professor of Adrenal Surgery
12 September 2025ERN eUROGEN warmly congratulates Prof. Hans Langenhuijsen on his appointment as Professor of Adrenal Surgery at Radboud university medical...
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