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ERDERA: First Research Funding Call Now Open!
10 December 2024The European Rare Diseases Research Alliance (ERDERA) Joint Transnational Call (JTC) 2025 is now open! Through this funding scheme,...
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Virtual Consultations: New User-Friendly Platform Launched
10 December 2024ERN eUROGEN is pleased to announce the successful transition to the new version of the Clinical Patient Management System...
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The Future of ERNs: Evaluation Report & Webinar
9 December 2024ERN Evaluation Results Report The recently published “ERN Evaluation Results Report – Independent Evaluations of European Reference Networks and...
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Budapest Conference Advances EU Rare Disease Action Plan
9 December 2024On 29 November 2024 in Budapest, the European Economic and Social Committee (EESC) conference, ‘For an EU Commitment to Tackling...
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Spina Bifida & Other Dysraphisms: Cross-ERN Workshop
20 November 2024Advancing Collaborative Research in Spinal Dysraphism and Neurogenic Bladder Care On 14-15 November 2024, experts, clinicians, and researchers gathered...
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New ARM Brochure: A Resource for Patients and Families
18 November 2024ERN eUROGEN is delighted to announce the release of a new brochure summarising the Patient Journey for Anorectal Malformation...
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European Testicular Tumour Workshop and Network
15 November 2024The 10th European Testicular Tumor Workshop, supported by ERN eUROGEN, was held in Prague from 9 to 11 October...
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ERN Guidelines Presented at Conference on Spina Bifida
15 November 2024Prof. Christian Radmayr, the chair of the Paediatric Urology Guidelines Panel of the European Association of Urology (EAU), attended...
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Online Paediatric Colorectal Course, 13-14 February 2025
14 November 2024We are thrilled to announce the upcoming Online Paediatric Colorectal Course, a two-day immersive program focusing on Anorectal Malformations...
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JARDIN Standardised Care Pathways for RDs: ERN eUROGEN’s Contribution
13 November 2024In July, the Joint Action on Integrating ERNs into National Health Systems (JARDIN) launched an important initiative to standardise...
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