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Spina Bifida & Other Dysraphisms: Cross-ERN Workshop
20 November 2024Advancing Collaborative Research in Spinal Dysraphism and Neurogenic Bladder Care On 14-15 November 2024, experts, clinicians, and researchers gathered...
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New ARM Brochure: A Resource for Patients and Families
18 November 2024ERN eUROGEN is delighted to announce the release of a new brochure summarising the Patient Journey for Anorectal Malformation...
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European Testicular Tumour Workshop and Network
15 November 2024The 10th European Testicular Tumor Workshop, supported by ERN eUROGEN, was held in Prague from 9 to 11 October...
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ERN Guidelines Presented at Conference on Spina Bifida
15 November 2024Prof. Christian Radmayr, the chair of the Paediatric Urology Guidelines Panel of the European Association of Urology (EAU), attended...
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Online Paediatric Colorectal Course, 13-14 February 2025
14 November 2024We are thrilled to announce the upcoming Online Paediatric Colorectal Course, a two-day immersive program focusing on Anorectal Malformations...
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JARDIN Standardised Care Pathways for RDs: ERN eUROGEN’s Contribution
13 November 2024In July, the Joint Action on Integrating ERNs into National Health Systems (JARDIN) launched an important initiative to standardise...
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ERDERA: European Partnership Opens a New Era in Rare Disease Research
13 September 2024The European Rare Diseases Research Alliance (ERDERA) will launch this September. With an estimated budget of 380 million euros, it aims to improve the...
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DeCODe Orphan and Paediatric Medical Device Project Launched
13 September 2024The EC-funded DeCODe consortium held its kick-off meeting in Brussels on 9-10 September 2024. ERN eUROGEN is proud to...
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EAU’s “An Urge To Act” Campaign Tackles Incontinence
10 September 2024ERN eUROGEN, the European Reference Network for Rare Urogenital Diseases and Complex Conditions, proudly supports the European Association of...
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World Health Assembly Resolution on Rare Diseases Webinar
10 September 2024ERN eUROGEN joined the recent public webinar, *Towards a WHA Resolution on Rare Diseases 2025*, held on 30 August...
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