-
High-Level Meeting on Rare Diseases 2025: Building a Sustainable Future
15 December 2025A High-Level Meeting on Rare Diseases (HLM Rare 2025) was held in Brussels on 9–11 December 2025, bringing together...
0 -
Results of Public Consultation Show Strong Support for ERNs
3 December 2025The European Commission has published the results of its public consultation on the next Multiannual Financial Framework (MFF), and...
-
EC’s First Monitoring Report: Strong Performance by ERN eUROGEN
27 November 2025The European Commission has published the first-ever Continuous Monitoring Report for the European Reference Networks (ERNs), covering the 2023–2024...
-
Final OD4RD2 Meeting Strengthens ERN–Orphanet Collaboration
27 November 2025The Orphanet Data for Rare Disease 2 (OD4RD2) project, led by Orphanet, held its final meeting on 5 and...
-
Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget
6 November 2025The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan. In...
-
New ERN eUROGEN Overview Video: Accessing Expertise Across Europe
30 October 2025We are pleased to share our new ERN eUROGEN overview video, “Accessing Expertise: How ERN eUROGEN Supports Rare and...
-
ERN eUROGEN at the ESSIC – CONVPP Congress, 2025
30 October 2025The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP)...
-
Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action
30 October 2025A new publication in the Orphanet Journal of Rare Diseases highlights the urgent need for improved psychosocial support for people...
-
Shaping the Future of Rare Disease Policy Together at ECRD 2026
30 October 2025ERN eUROGEN is proud to be an Associate Partner of the 13th European Conference on Rare Diseases & Orphan...
-
Updated ERN eUROGEN Resources for Anorectal Malformations
25 September 2025ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions, is pleased to announce new and...
News
