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Survey: Machine Learning for RD Diagnosis
25 May 2022The Screen4Care Project Consortium invites ERN members to complete a short questionnaire (15 minutes) about their understanding, experience and attitudes regarding machine learning (ML)...
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EC Health Programme: Public Consultation
25 May 2022The public consultation is open for the final evaluation of the 3rd health programme (2014-2020). The results will be used to improve...
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RDI & EURORDIS Launch Global Survey
25 May 2022Rare Diseases International has partnered with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis for Persons...
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EJP RD: Research Mobility Fellowships
25 May 2022A call is now open to support PhD students, postdocs and medical doctors in training from a Full Member or Affiliated...
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KS/XXY Awareness Day: Website and Video
24 May 2022On 10 May 2022, it was the first-ever KS/XXY Awareness Day run by the Klinefelter’s Syndrome Association, represented in our European...
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Endorsement of Role of Hormones in EU Health
24 May 2022Endo-ERN and ERN eUROGEN have endorsed the European Society of Endocrinology‘s declaration ‘Recognizing the Key Role of Hormones in European Health’ (The...
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Cross-Border Healthcare: Reports
24 May 2022The EC has published a study supporting the evaluation of Directive 2011/24/EU to ensure patients’ rights in the EU in cross-border...
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European Health Data Space: Launched
24 May 2022On 3 May 2022, the European Commission launched the European Health Data Space (EHDS), one of the central building blocks of a...
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Joint Action: Integration into Healthcare Systems
24 May 2022The EC ERN Office has sent a letter to the Board of Member States for ERNs (BoMS) to encourage their respective...
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Global Collaboration: Anorectal Malformation Innovations
24 May 2022ERN eUROGEN has now finalised a Memorandum of Understanding (MoU) with the Murdoch Children’s Research Institute in Melbourne, AU,...