Dissemination & Collaboration

Dissemination & Collaboration

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Research

Knowledge sharing across the workstreams will foster innovation and allow new treatments or surgical techniques to be tested and made available to patients where there are gaps in current effective diagnoses or treatments. Together with patients, ERN eUROGEN will develop new research programmes and stimulate new studies.

ERN eUROGEN is currently:

European Joint Programme on Rare Diseases: EJP RD

The EJP RD is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high-quality research into effective treatments.

It brings together over 130 institutions (including all 24 ERNs) from 35 countries to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.

EJP RD provide funding opportunities, a guide for patients in research, a research translation support office, a clinical studies support office, and ethics and regulatory advice.  They also have a resource map showing coordinated access to data and services.

The ERN Collaborative Platform (ECP)

The ERN Collaborative Platform, known as the ECP, is a secure web-based platform that supports the ERN Board of Member States, the ERN Coordinators and ERNs members in their online communication, document management and event organization. It is not for the exchange of patient data (personal or clinical).

Authorised Users

Registered users can log into the ECP here.

Requesting Access to the ECP

Access to the ECP is strictly regulated to protect data privacy. Only authenticated users (EU Login) can request authorisation (SAAS) from the ERN to use the ECP.

For those who are working in one of our member centres and have not registered, here is a guide to creating your EU Login, and applying for access to the ECP.