We look forward to welcoming representatives from our Full Member / Affiliated Partner Healthcare Providers, our ERN Patient Advocacy Groups, and our Supporting Partners to our virtual Strategic Board Meeting on Friday 12 June 2020 from 08:00-18:00 CEST (07:00-17:00 BST).
We have emailed details on how to join the WebEx meeting. If you believe you should have received these and have not, then please contact us.
FINAL AGENDA:
08.00 – 08.30: Introduction & Overview – Wout Feitz, ERN eUROGEN
08.30 – 09.00: Management & Enlargement of the Network – Michelle Battye, ERN eUROGEN
09.00 – 09.30: Discussion and Q&A
09.30 – 10.00: Working Group on Monitoring & Next Steps – Enrique Terol, DG SANTE, EC
10.00 – 10.30: Discussion and Q&A
10.30 – 10.45: Coffee break
10.45 – 11.15: ePAG update – TBC
11.15 – 11.45: Discussion and Q&A with patient representatives
11.45 – 12.30: Agreeing eUROGEN outcome indicators
12.30 – 13.30: Lunch break
13.30 – 14.00: Can we contribute to a constructive dialogue between different DSD patient groups, healthcare professionals and other parties involved in DSD? – Katja Wolffenbuttel, Erasmus MC
14.00 – 14.30: Discussion and Q&A
14.30 – 14.45: Coffee break
14.45 – 15.15: Recent updates to CPMS – Bart Verlinden, DG SANTE EC and Alan Comer, OpenApp
15.15 – 15.30: Discussions and Q&A
15.30 – 15.45: Media & Communications – Jen Tidman, ERN eUROGEN
15.45 – 16.00: Coffee break
16.00 – 16.20: Results of the H-CARE pilot survey – Jessie Dubief, EURORDIS
16.20 – 16.30: Discussions and Q&A
16.30 – 17.30: Strategic Board voting and discussion
17.30 – 18.00: Wrap up – Wout Feitz, ERN eUROGEN
18.00: Meeting closes
