EURORDIS ePAG Steering Committee Meeting 2023

The EURORDIS European Patient Advocacy Group (ePAG) Steering Committee Annual Meeting (virtual, 13 November 2023) reviewed the results of the five-year evaluation of the European Reference Networks (ERNs), particularly common areas of improvement, the evaluation process, and patient involvement in the ERNs.

Recordings of the opening remarks and setting the scene by Yann Le Cam (EURORDIS) and the first session on sharing main results and key learnings are available. You can also download the presentations by Holm Graessner (ERN RND Coordinator), Ruth Ladenstein (ERN PaedCAN Coordinator) and Ignacio Blanco (ERN GENTURIS, Hospital Germans Trias I Pujol, Barcelona).

Click the links below to download the presentations:

• Holm Graessner
• Ruth Ladenstein
• Ignacio Blanco