Patient groups

European Patient Advisory Groups (ePAG) bring together elected patient representatives and affiliated organisations to ensure that the patient voice is heard in the development of ERNs. They have played a significant role in the establishment of the eUROGEN network and still form one of our most important advisors in ensuring our care is patient-centred and patients’ rights and choices are respected.

The following EURORDIS patient’s groups have endorsed eUROGEN and actively contribute to our mission: