Poster accepted for European Conference on Rare Diseases & Orphan Products

Poster accepted for European Conference on Rare Diseases & Orphan Products

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event. ECRD 2020 will take place uniquely online from 14-15 MayRegistration IS OPEN until 1 May.

ERN eUROGEN is proud to be a partner for ECRD and is honoured that our poster “ERN eUROGEN: The ERN for rare and complex urorectogenital diseases and conditions” (#79) was accepted for the conference’s Theme 3: Share, Care, Rare: Transforming care for rare diseases by 2030.  Michelle Battye, eUROGEN Centre Manager looks forward to presenting the poster during the meeting. We would be delighted if you would join us!

There is also a FREE pre-conference webinar on the Rare2030 Project: 23 April, 13.00 – 14.00 CEST.  Webinar Registration is now OPEN. The webinar is free for all conference attendees to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions at the conference.

People living with a rare disease have the right to reach their highest potential of well-being. Join ECRD 2020 online to take part in discussions to inform and build the future ecosystem for rare disease policies and services.

The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community from around the world: patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

Why now? As the EU shapes its future policy and spending frameworks for the coming decade, ECRD 2020 serves as an opportunity to co-create policy options today that can lead to a better patient journey for the years ahead.