The EURORDIS Rare on Air podcast explores the unique experiences, challenges and successes of people from the rare disease community and investigates how we can build a better world for those who have a rare condition. Each episode focuses on a specific theme or policy area relating to the work and advocacy of EURORDIS, and a special series, ERNs on Air, relates to the European Reference Networks.
In the new episode, released today, Michelle Battye (ERN eUROGEN Programme Manager) and Charlotte van Beuzekom (Endo-ERN Project Manager) talk with Rita Francisco (Survey Junior Manager at EURORDIS), Mariette Driessens (Policy Officer at VSOP – the Dutch Alliance for Rare disease).
Michelle and Charlotte take part in the challenge of doing a ‘compare and contrast’ exercise to help listeners understand how similar, or different, ERNs can be from one another. They give personal insights into what being an ERN Manager entails, share information on current ERN projects, comment on recent challenges and achievements, and even give a sneak peek into what the future will bring.
