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ERN Working Group on Knowledge Generation
6 July 2020by Serena Bartezzati, ePAG Representative Knowledge generation and dissemination is a key objective of the ERNs. The Working Group...
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Update from ERN eUROGEN Annual Strategic Board Meeting 2020
6 July 2020ERN eUROGEN held their annual Strategic Board Meeting using virtual conferencing on 12 June 2020, despite the unprecedented global...
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Meet the Team: Loes van der Zanden, ERN eUROGEN Registry Coordinator
6 July 2020I am looking forward to starting as Coordinator of the ERN eUROGEN Registry. It will be a challenge to...
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Meet the Team: Erik Leijte, ERN eUROGEN CPMS Clinical Data Specialist
6 July 2020I am very excited to start work with ERN eUROGEN and get familiar with the ERN and Clinical Patient...
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Meet the Team: Jen Tidman, ERN eUROGEN Business Support Manager
6 July 2020As my job title suggests I am responsible for supporting and managing the aspects of ERN eUROGEN’s business which...
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Meet the Team: Darren Shilhan, ERN eUROGEN Lead IT and Performance Data Analyst
6 July 2020My primary role is to help our network clinicians get their difficult patient cases uploaded to the Clinical Patient...
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Meet the Team: Michelle Battye, ERN eUROGEN Centre Manager
6 July 2020My main focus is on ensuring the network is active, working together as a team, and that we are...
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ERN eUROGEN Strategic Board Meeting 2020 – 12 June 2020
4 June 2020We look forward to welcoming representatives from our Full Member / Affiliated Partner Healthcare Providers, our ERN Patient Advocacy Groups,...
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IRDIRC Orphan Drug Development Guidebook
4 June 2020The commentary ‘Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook’ has been published in Nature...
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COVID-19 Paediatric Clinical Research: Dosing Recommendations
4 June 2020The European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) Coordinating Group has issued a statement to...
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