News

As my job title suggests I am responsible for supporting and managing the aspects of ERN eUROGEN’s business which...

My primary role is to help our network clinicians get their difficult patient cases uploaded to the Clinical Patient...

My main focus is on ensuring the network is active, working together as a team, and that we are...

We look forward to welcoming representatives from our Full Member / Affiliated Partner Healthcare Providers, our ERN Patient Advocacy Groups,...

The commentary ‘Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook’ has been published in Nature...

The European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) Coordinating Group has issued a statement to...

In the context of COVID-19 pandemic and within the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a...

The Commission has proposed a new, ambitious stand-alone health programme for the 2021-2027 period – the EU4Health Programme. EU4Health...

Each ERN, including eUROGEN, has developed an integration strategy for the active engagement and participation of Affiliated Partners, giving...