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UK: Brexit, Horizon Europe & Rare Diseases Framework
4 February 2021The UK withdrawal from the EU took effect on 1 January and six UK healthcare providers have thus ceased...
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eUROGEN Webinar: Reconstructive surgery following penile cancer
19 January 2021On Tuesday 9th February at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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eUROGEN Webinar: Posterior Urethral Valves – Treatment and follow-up from a pediatric urological perspective
22 December 2020On Tuesday 12th January at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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Training Programme in Intensive Care Skills
21 December 2020In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the...
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Brexit – UK clinicians Warn of No-Deal Consequences for Patients
21 December 2020In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have...
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EURORDIS Black Pearl Awards
21 December 2020The tenth anniversary special online edition of the EURORDIS Black Pearl Awards will take place during the evening of...
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ECRD Meeting – Executive Summary & Special Supplement
21 December 2020The Executive Summary from the 10th European Conference on Rare Diseases and Orphan Products (held 14-15 May 2020) is...
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The ERICA Project: ERNs Joining Forces on Research and Innovation
21 December 2020The European Rare Disease Research Coordination and Support Action (ERICA) Project received a positive evaluation for an H2020 grant...
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ERN Mobility / Exchange Programme
21 December 2020The European Commission is funding an exchange programme to stimulate knowledge sharing and collaboration between healthcare professionals in the...
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EURORDIS Vision for a Mature ERN System by 2030
21 December 2020EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease...
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