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Clarification on ERNs and industry
4 August 2020A new Addendum to the ERN Board Statement has been drafted by the working group on “Legal & Ethical...
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Successful applicants for EJP RD’s ERN fellowship exchange
4 August 2020ERN eUROGEN’s two applicants successfully received funding for an ERN fellowship exchange in the first ‘EJP RD ERN RD...
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ERN Project Managers Group: inaugural virtual meetings held
4 August 2020The ERN Project Managers (PMs) held virtual meetings on 15 and 23 July 2020, with the kind support of...
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eUROGEN Webinar: Paediatric Colorectal Surgery – An introduction to eUROGEN ARM Webinars
17 July 2020On Tuesday the 21st July at 18:00 CEST, we will be continuing our series of eUROGEN webinars. This webinar...
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ERN Guidelines Training – First Announcement
6 July 2020The ERN Guidelines Consortium training programme for ERN Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) is planned...
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EMA Waives Fees to Encourage Orphan Medicine Development
6 July 2020To further encourage the development of treatments for rare diseases, the European Medicines Agency (EMA) will waive all fees for...
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ERN Working Group on Knowledge Generation
6 July 2020by Serena Bartezzati, ePAG Representative Knowledge generation and dissemination is a key objective of the ERNs. The Working Group...
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Update from ERN eUROGEN Annual Strategic Board Meeting 2020
6 July 2020ERN eUROGEN held their annual Strategic Board Meeting using virtual conferencing on 12 June 2020, despite the unprecedented global...
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Meet the Team: Loes van der Zanden, ERN eUROGEN Registry Coordinator
6 July 2020I am looking forward to starting as Coordinator of the ERN eUROGEN Registry. It will be a challenge to...
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Meet the Team: Erik Leijte, ERN eUROGEN CPMS Clinical Data Specialist
6 July 2020I am very excited to start work with ERN eUROGEN and get familiar with the ERN and Clinical Patient...
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