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EURORDIS Vision for a Mature ERN System by 2030
21 December 2020EURORDIS have published their vision for a mature ERN system that leaves no person living with a rare disease...
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ERN Coordination Group Meeting
21 December 2020The ERN Coordinators Group (ERN CG) met with the European Commission on 27 November 2020 with a very full...
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EJP RD Call: Innovation Projects in Clinical Trials Methodologies in Limited Populations
21 December 2020The EJP RD internal call for innovation projects in clinical trials methodologies in limited populations opened on 7 December 2020...
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eUROGEN Webinar: Newborn management – Female patient
3 December 2020On Tuesday 15th December at 18:00 CET, we will be continuing our series of eUROGEN webinars. This is the...
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EC ERN Mobility & Exchange Programme
10 November 2020The first meeting regarding the European Comission’s ‘ERN Capacity & Knowledge Sharing Through Short Term Mobility & Exchanges of...
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ERN IT Advisory Group: 8th meeting
10 November 2020The 8th meeting of the European Reference Networks IT Advisory Group was held on 8 October and attended by Darren...
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Brexit and the ERNs
10 November 2020There is still no clear picture of how UK healthcare providers, clinical experts and patient organisations involved in the...
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ERN Coordinators Group: CPMS Updates & Non-Compliance of Healthcare Providers
10 November 2020The first internal meeting of the ERN Coordinators Group (CG) took place on 4 November and was attended by...
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CEF 2020 Grant Proposal Submitted
10 November 2020The CEF 2020 proposal written by the ERN eUROGEN Coordination Team was successfully submitted on 3 November. This application is for funding earmarked for ERNs, so...
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eUROGEN Webinar: Complex urethral reconstruction – the two-staged Meshgraft technique
6 November 2020On Tuesday 24th November at 18:00 CEST, we will be continuing our series of eUROGEN webinars. This webinar will...
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