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Rare 2030 Final Virtual Conference
11 March 2021At their final virtual conference on 23 February, the Rare 2030 project launched the final report of the project:...
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ERN eUROGEN Webinar: Bowel management in children with anorectal malformations
10 March 2021On Tuesday 30th March at 18:00 CET, we will be continuing our series of eUROGEN webinars. This webinar will...
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ERN eUROGEN Webinar: Challenges in oncologic treatment of retroperitoneal sarcomas
1 March 2021On Tuesday 9th March at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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eUROGEN Webinar: VACTERL or not VACTERL – does it matter? For geneticists, patients, & clinicians
15 February 2021On Tuesday 23rd February at 18:00 CET, we will be continuing our series of eUROGEN webinars. This is the...
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UK: Brexit, Horizon Europe & Rare Diseases Framework
4 February 2021The UK withdrawal from the EU took effect on 1 January and six UK healthcare providers have thus ceased...
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eUROGEN Webinar: Reconstructive surgery following penile cancer
19 January 2021On Tuesday 9th February at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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eUROGEN Webinar: Posterior Urethral Valves – Treatment and follow-up from a pediatric urological perspective
22 December 2020On Tuesday 12th January at 18:00 CET, we will be continuing our series of eUROGEN webinars. The webinar will...
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Training Programme in Intensive Care Skills
21 December 2020In its aim to support EU healthcare systems and clinicians at the frontline dealing with the COVID-19 pandemic, the...
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Brexit – UK clinicians Warn of No-Deal Consequences for Patients
21 December 2020In an open letter published in The Lancet, Marc Tischkowitz, Beverley Power, Graham Slater and 70 additional cosignatories have...
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EURORDIS Black Pearl Awards
21 December 2020The tenth anniversary special online edition of the EURORDIS Black Pearl Awards will take place during the evening of...
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