ERN eUROGEN’s clinical work is organised into three Workstreams (WS), each divided into Expertise Areas* (EAs) covering the specific rare diseases and complex conditions within its scope. Each Workstream has a Workstream Lead, Clinical Lead, Education Lead, and Research Lead (the same roles that sit on the Operational Board), and each Expertise Area has its own Expertise Area Coordinator (EAC) and Vice-EAC. The WS Leads/EACs are responsible for organising the day-to-day working mechanisms of their respective groups. All subgroups are actively involved in implementing the Work Packages. The WS Leads and EACs ensure the flow of data and information within their specific group(s) and the provision of services and advice offered by ERN eUROGEN. (*Note: Two Expertise Areas, differences in sex development (EA 1.1) and transgender patient surgery (EA 2.7), relate to individual identity rather than disease or disorder. For this reason, the network refers to Expertise Areas rather than “disease areas” throughout, in line with the EU’s principles of equality, diversity, and inclusiveness.) The table below shows ERN eUROGEN’s Healthcare Provider (HCP) coverage of EAs on one page (as of 15 July 2026). To find details about the HCPs, visit Healthcare Providers. To join ERN eUROGEN, Full Member and Affiliated Partner healthcare providers (HCPs) must show evidence of covering Expertise Areas (EAs) and that they meet the network-specific criteria related to these to ensure they have the required standards of expertise and resources to treat patients appropriately and effectively. The network has a protocol for filling gaps in and reviewing existing criteria using data from annual monitoring exercises and input from network experts and the European Patient Advocacy Group. HCPs can apply to the Board of Member States for ERNs (BoMS) to expand their expertise due to staff changes or new endorsements by national health ministries. ERNs can also apply to the BoMS to extend their EAs and include additional rare diseases and complex conditions. ERN eUROGEN is currently awaiting a decision about expanding its EA coverage to include male infertility, paediatric renal transplantation in urology, paediatric oncological urology, and rare bladder tumour surgery.
Workstreams & Expertise Areas
Standards & Evidence
Expansion of Expertise
Workstreams & Expertise Areas
