Virtual Consultations

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• Virtual Consultations
• Clinical Guidelines
• Research & Innovation
• Education & Training
• The eUROGEN Patient Registry
• Cross-ERN Actions
• ERNs in General

Virtual Consultations - Clinical Patient Management System

Our multidisciplinary teams of experts are able to diagnose, suggest treatment or surgery, and then provide post-operative and transitional support. To do this, we use a secure web-based tool known as the Clinical Patient Management System (CPMS), co-financed by the Connecting Europe Facility of the European Union.

The system supports European Reference Networks (ERNs) in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders. Healthcare professionals can use CPMS to collaborate actively and share patient cases both within and across ERNs. More details on the technicalities of CPMS and data protection requirements can be found here.

In order to refer your case to ERN eUROGEN for consultation through CPMS, please note the following:

• Your healthcare provider (HCP) must be located in an EU or EEA Member State.
• The patient must have a rare uro-recto-genital disease or complex condition that falls within the scope of our ERN – please check the disease areas we cover within our three workstreams.
• You should ask for advice also from your national contact point on the Board of Member States for ERNs (BoMS) about the referral process into the ERNs.
• If your referral is accepted by ERN eUROGEN, you must be willing to obtain full informed consent from the patient to share their data using CPMS, then we can grant you a guest user account for a short time period to access the system.
• You must be willing to invest some time to upload the patients’ medical information, including any relevant imaging into CPMS in order for their case to be discussed by our panel of experts.
• You will receive an ERN Outcome Report document from our panel of experts with highly specialised advice on diagnosis or treatment of the patient concerned, based upon the latest current available scientific knowledge.
• You understand that ERN eUROGEN can only provide expert highly specialised multi-disciplinary advice – all legal liability and responsibility for the patient rests, as it has always done, with the clinician and healthcare provider treating the patient where the patient lives.

If you have a case that you would like to refer to ERN eUROGEN, please get in touch via our contact form and we will respond with further advice.