Webinar Programme

Webinar Programme

ERN eUROGEN’s webinar programme currently runs two sessions per month. These are on Tuesdays at 18:00 CET. From the beginning of 2022, the webinars will move to a new regular Wednesday slot, still at 18:00 CET. We shall also increase the frequency, with up to four sessions each month.

Our ARM webinar series covers all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations. They are joint presentations between ERNs eUROGEN and ERNICA, and are supported by the European Paediatric Surgeons’ Association (EUPSA).

All webinars are run via GoToWebinar and we have produced a brief reference guide for attendees.

Please find the list of scheduled webinars below.

Forthcoming webinars

Date Workstream Title Presenter(s) Registration Link
19/01/22 WS3 Sentinel node biopsy for penile cancer: why, when, how, and new developments
Oscar Brouwer
26/01/22 WS1 (ARM) Robotics for the surgical treatment of Hirschsprung disease Alessio Pini Prato
23/02/22 WS1 (ARM) Urological issues in patients with anorectal malformations Liesbeth de Wall
23/03/22 WS1 (ARM) Surgical management of total colonic aganglionosis (TCA) Mikko Pakarinen & Tomas Wester
27/04/22 WS1 (ARM) Patient journey in ARM Dalia Aminoff & Nicole Schwarzer
25/05/22 WS1 (ARM) Genetics of ARM Heiko Reutter

 

Past webinars

Here are the descriptions and links to recordings of our previous sessions:

Webinar 30: Management of urethral and bladderneck fistulas[GoToWebinar] [Youtube] by Dr. Pim Sloots & Prof. Pietro Bagolan (30 November 2021)

This webinar focusses on the diagnosis, treatment, and prognosis of ARM-type bladderneck fistulas and it is aimed at healthcare professionals.

This webinar was presented on Tuesday 30th November 2021 by Dr. Pim Sloots from Rotterdam and professor Pietro Bagolan from Rome

Webinar 29: Effective multidisciplinary BPS-IC healthcare management [Go to Webinar][Youtube] by Dr. Dick Janssen (9 November 2021)

This webinar focuses on current perspectives for optimal BPS-IC healthcare management – who should be part of this team approach and what can each specialist bring to the table to change the downward spiral in which many of our BPS-IC patients find themselves. There is a focus on current bottlenecks, available diagnostic requirements, and treatment modalities.

This webinar was presented on Tuesday 9th November 2021 by Dr. Dick Janssen from Radboudumc in Nijmegen in the Netherlands. It is aimed at healthcare professionals.

 

Webinar 28: Management of cloacal malformations- What is new in 2021? [Go to Webinar] [Youtube] by Dr. Marc Levitt (25 October 2021)

The management of cloacal malformations, including prenatal diagnosis, newborn treatments, surgical reconstruction techniques, and long term outcomes, will be discussed. The webinar is aimed at both healthcare professionals and patient groups.

This webinar was presented by Dr. Marc Levitt from the Children’s National Hospital in Washington D.C on 27 October 2021.

 

Webinar 27: Perineal groove, how (not) to treat. [Go to Webinar] [Youtube] by Dr. Inbal Samuk (19 October 2021)

This webinar provides an introduction to the perineal groove and presents the results of an international multicentric study conducted in the European Anorectal Malformation Network with regards to management and outcome. This webinar was presented on 19 October 2021 by Dr. Inbal Samuk, senior consultant pediatric surgeon at Schneider Children’s Medical Center, University of Tel Aviv.

 

Webinar 26: Stone Management [GoToWebinar] [Youtube] by Ms Kay Thomas & Dr. Matthew Bultitude 14 September 2021)

This webinar presented a state of the arts on the latest evidence for medical and surgical management of cystinuria, including; optimising medical treatment, choosing surgical options, dietary prevention, and patient engagement. This webinar was presented by Ms Kay Thomas and Dr Matthew Bultitude, both Consultant Urological Surgeons at the Guy’s and St Thomas’ Hospitals NHS Foundation Trust in London. It is aimed at healthcare professionals.

 

Webinar 25: Guidelines on neurogenic bladder and bowel in children and adolescents [GoToWebinar] [Youtube] by Dr. Giovanni Mosiello (6 July 2021)

Neurogenic bladder and bowel dysfunction (NBBD) in children are commonly related to spina bifida patients. However, many other causes of NBBD are common to observe in daily clinical practice. Patients with NBBD require a multidisciplinary approach and highly specialised treatment, which is not always properly defined in current guidelines. Besides, these guidelines are not discussed with families and patients, and some difficulties exist regarding implementation. Eventually, transitional care is a critical point, and there is a need to ameliorate this process.

 

Webinar 24: Hydrocolonic Sonography and Self-Management in Patients with Incontinence – Tools to Facilitate Bowel Management [GoToWebinar] [YouTube] by Stefanie Märzheuser & Annette Lemli (22 June 2021)

Despite good surgical repair of ARMs and optimal pull-through in Hirschsprung disease, impaired bowel function is a common issue. Bowel Management and transanal irrigation are established means to control symptoms of incontinence and increase patients’ quality of life. Hydrosonography assesses the amount of fluid needed to clean the colon from the anal canal to the cecum. Sonography is performed after colonic preparation and is useful for the detection of incomplete stool evacuation. Lack of radiation exposure makes it a useful option for assessment and follow-up of therapeutic efforts, both in pediatric and older patients. The ability to tailor treatment to individual patients keeps hospitalization to a minimum. With the help of self-management, we can make children independent from parents and carers prior to puberty.

 

Webinar 23: Quality of life in patients with ARM [GoToWebinar] [YouTube] by Caterina Grano, Chris Verhaak, & Aukje Aerts (25 May 2021)

ARMs greatly affect the quality of life (QoL) because of functional impairments and through psychosocial wellbeing, sexuality and self-esteem. In addition, treatment options are invasive and ask for intense disease management, impacting the daily life of children, adolescents, adults and their families. This presentation highlights the state of the art regarding research on QoL and mental health in children and adults with ARM. In addition, theoretical framework and implications for paediatric clinical practice as well as an overview of psychosocial interventions are presented. The webinar is given by experts in research on QoL as well as by a psychologist involved in daily clinical practice with children and adolescents with ARM and with their parents.

This webinar was presented on 25th May 2021 by clinical psychologists Ass Prof Caterina Grano (Associate Professor of Clinical and Health Psychology at the Department of Psychology, Sapienza University of Rome), Ass Prof Chris Verhaak (Associate Professor and clinical psychologist in paediatric psychology in Radboudumc Amalia Children’s Hospital in The Netherlands), and Aukje Aerts (a Health Psychologist working in clinical care with children with ARM and Hirschsprung Disease and their families, also in Radboudumc Amalia Children’s Hospital).

 

Webinar 22: Should we abandon laparoscopy in ACC? [GoToWebinar] [YouTube] by Hans Langenhuijsen (11 May 2021)

This webinar was presented on 11th May 2021 by Mr. Hans Langenhuijsen, Urologist at Rabdoudumc in Nijmegen, and eUROGEN Workstream Leader for rare urogenital tumours. During this webinar, the surgical techniques for ACC are highlighted. Is there a role for laparoscopy or should ACC always be operated with an open surgical technique? The pros and cons of minimally invasive surgery for ACC are discussed, including the possible risks.

 

Webinar 21: Penile cancer – a patient perspective [GoToWebinar] [YouTube] by Rob Cornes, John Osborne, & Kenneth Manzie (4 May 2021)

This webinar was presented on 4 May 2021. It firstly examines the facts and figures around penile cancer and how support can be provided to patients, particularly with a disease that can have such profound psychological, as well as physical, impacts. This is led by Rob Cornes, Male Cancer Information Nurse Specialist at Orchid, the UK’s leading charity working on those affected by or interested in prostate, testicular and penile cancer. The second part of the webinar is led by John Osborne, who details his own experiences of being a penile cancer patient. He now works as a patient advocate for penile cancer care, along with another patient, Kenneth Manzie. Rob, John, and Kenneth are the representatives of the European Patient Advocacy Group (ePAG) for penile cancer within eUROGEN. This webinar is aimed at both health professionals and patient groups.

 

Webinar 20: Syndromic forms of caudal malformations [GoToWebinar] [YouTube] by Prof. Sabine Sarnacki & Dr. Celia Cretolle (20 April 2021)

This webinar was presented on 20 April 2021 by Prof. Sabine Sarnacki & Dr. Celia Cretolle from the Department of Paediatric Surgery, Hôpital Necker-Enfants Malades in Paris, and focuses on syndromic forms of caudal malformations.

 

Webinar 19: Management of bladder exstrophy during childhood [GoToWebinar] [YouTube] by Prof. Alaa El-ghoneimi, Prof. Marc David Leclair, Prof. Henri Lottman, & Associate Prof. Thomas Blanc (13 April 2021)

The goal of this webinar is to present the current management of bladder exstrophy in France. It will focus on the timing of surgery after birth; type of closure (Kelly procedure; complete reconstruction); the management of complications after closure (UTIs, dilatation of the upper urinary tract) and the management of persistent incontinence (bulking agents, bladder neck reconstruction, augment and Mitrofanoff).

The webinar was presented on 13 April 2021 by Prof. Alaa El-ghoneimi (University of Paris, Robert Debré Hospital), Prof. Marc David Leclair (Nantes University and Hospital), Prof. Henri Lottman (University of Paris, Necker Hospital), and Associate Prof. Thomas Blanc (University of Paris, Necker Hospital). It is aimed at both healthcare professionals and patient groups and was supported by the European Society for Paediatric Urology (ESPU).

 

Webinar 18: Bowel management in children with anorectal malformations [GoToWebinar] [YouTube] by Dr. Barbara Daniela Iacobelli & June Rogers MBE (30 March 2021)

This webinar focuses on the importance of bowel management in patients operated for anorectal malformations. The treatment of these patients starts with the surgical procedure, which represents only the first step of a long pathway. Bowel management plays a pivotal role in the treatment of faecal incontinence, and hence in the quality of life of these patients.

The webinar was presented 0n 30 March 2021 by Dr. Barbara Daniela Iacobelli, paediatric surgeon at Children’s Hospital Bambino Gesu in Rome, and June Rogers MBE, a former specialist nurse and representative for the patient organisation Bladder & Bowel UK, and is aimed at both healthcare professionals and patient groups.

 

Webinar 17: Challenges in oncologic treatment of retroperitoneal sarcomas [GoToWebinar] [YouTube] by Dr. Nina Dabelić (9 March 2021)

Sarcomas are a rare and very heterogeneous group of malignant tumours with more than 70 different histologic subtypes. Their biologic and clinical behaviour and response to oncologic therapies can vary widely across different subtypes. Retroperitoneal localisation of sarcomas represents an additional challenge for the diagnosis and treatment for various reasons that will be discussed. Certain principles of oncological management of retroperitoneal sarcomas will be outlined. The need for individualised tumour assessment and patient-tailored therapeutic decision making within a multidisciplinary tumour board will be highlighted. Several patient cases will be presented to illustrate the topic.

This webinar was presented on 9th March 2021 by Dr. Nina Dabelić, clinical oncologist at the Department of Oncology and Nuclear Medicine, University Hospital Centre Sestre Milosrdnice in Zagreb, and is aimed at healthcare professionals. The presentation was co-authored by eUROGEN expert Prof. Ana Fröbe.

 

Webinar 16: VACTERL or not VACTERL – does it matter? For geneticists, patients, & clinicians [GoToWebinar] [YouTube] by Dr. Carlo Marcelis & Prof. Ernesto Leva (23 February 2021)

This is the fourth webinar in the series covering all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations, and is a joint presentation between ERN eUROGEN and ERN ERNICA, and is supported by the European Paediatric Surgeons’ Association (EUPSA).

VACTERL association is the non-random occurrence of a combination of vertebral, anal and cardiac anomalies, trachea-oesophageal fistula with oesophageal atresia, radial anomalies, and renal dysplasia. The clinical diagnosis can be made when at least three component features are present.

This webinar, delivered on 23rd February 2021, presents the views of both a geneticist and a surgeon as to the importance of VACTERL diagnosis and is aimed at both health professionals and patients. The case from the geneticists’ side is made by Dr. Carlo Marcelis from the Department of Human Genetics in Radboudumc in the Netherlands, and the view from the surgeons’ side is made by Prof. Ernesto Leva, Director of the Department of Pediatric Surgery at the Policlinico in Milan. It is aimed at both healthcare professionals and patients.

 

Webinar 15: Reconstructive surgery following penile cancer [GoToWebinar] [YouTube] by Prof. Vijay Sangar (9 February 2021)

Penile Cancer can be a physically and functionally impairing disease. This webinar discusses different cases and how reconstruction can be utilized to maintain penile anatomy and function as best as possible. This can include reconstruction of small defects to phalloplasty.

The webinar was presented on 9th February 2021 by Vijay Sangar, Professor of Urology at the Christie NHS Foundation Trust, Manchester University, and is aimed at healthcare professionals.

 

Webinar 14: Posterior Urethral Valves – Treatment & follow-up from a pediatric urological perspective [GoToWebinar] [YouTube] by Assoc. Prof. Sofia Sjöström & Assoc. Prof. Gundela Holmdahl (12 January 2021)

This webinar focuses on Posterior urethral valves (PUV) which is the most common congenital obstruction of the lower urinary tract in boys with an incidence of 1:5000 births. PUV carries a high risk of renal dysplasia, hydronephrosis, vesicoureteral reflux, bladder dysfunction and prenatal oligohydramnios with lung hypoplasia. The surgical treatment with ablation of the valves is a small endoscopic intervention but the long-term consequences of the valves can be fatal. The renal impairment is often progressive and the lifetime risk of end-stage renal disease is up to 30%. Prognostic factors include prenatal diagnosis and oligohydramnios, nadir creatinine in the first year of life, reflux, recurrent urinary tract infections, bladder dysfunction and polyuria. The main goal of treating boys with PUV is to preserve renal function. In this webinar, we will discuss the urological treatment initially and at follow-up.

This webinar was presented on 12th January 2021 by associate professor Sofia Sjöström from The Queen Silvia Children´s Hospital, Gothenburg and associate professor Gundela Holmdahl from Karolinska University Hospital, Stockholm, and is aimed at healthcare professionals.

 

Webinar 13: Newborn Management of ARM in Female Patients [GoToWebinar] [YouTube] by Dr. Jan-Hendrik Gosemann and Dr. Herjan van der Steeg (15 December 2020)

This is the third webinar in the series covering all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations, and is a joint presentation between ERN eUROGEN and ERN ERNICA. This webinar presents a diagnosis-and-treatment flowchart based on ARM-Net consensus concerning diagnosis and early management of newborns with anorectal malformations (ARM). The presentation focuses on the different ARM in female patients. Diagnostic measures and timing are presented, supported by pictures of different female ARM. Suggestions concerning diagnostics and further therapy are given, taking into account the resources and experience of the audience. Take-home messages on initial diagnostics and (surgical) management are provided.

This webinar was presented by Dr. Jan-Hendrik Gosemann from Universitätsklinikum Leipzig and Dr. Herjan van der Steeg from Radboudumc Nijmegen, and is aimed at healthcare professionals.

 

Webinar 12: Complex urethral reconstruction – the two-staged Meshgraft technique [GoToWebinar] by Prof. Margit Fisch and Dr. Tim Ludwig (24 November 2020)

Two-staged repair of urethral strictures is indicated if the urethral plate is narrow and scarred with a lumen of less than 6F or if it is not salvageable. Today buccal mucosa is the preferred tissue for urethral reconstruction, however, longer grafts are associated with increased morbidity at the harvesting site. Exposure to air with subsequent shrinkage is another disadvantage of BM. Thus, in long complex strictures requiring a staged procedure, we prefer the Meshgraft-technique (harvested from the inner thigh) as described by Prof. Schreiter in 1984. They discuss the indications on the basis of case presentations. The main focus will be on the step-by-step surgical technique (Video stage I), and tips and tricks. They present their experience and how to manage complications.

This webinar was presented by Prof. Margit Fisch and Dr. Tim Ludwig from Universitätsklinikum Hamburg-Eppendorf, and was aimed at healthcare professionals.

 

Webinar 11: Intermittent (self-)Catheterisation in children: Teaching, guidance and follow-up care by nurse specialists & urotherapists [GoToWebinar] [YouTube] by Hanny Cobussen-Boekhorst (3 November 2020)

The introduction of Intermittent Catheterisation (IC) represented a urological revolution for patients with different (neurological) diagnoses and bladder-emptying difficulties. Nowadays, the technique of IC is applied to all age groups and has become an important therapeutic tool in paediatric urology. The goal of teaching IC is to provide a bladder-management program that promotes optimal health, self-esteem and independence. From the very beginning, nurses were involved in this treatment and nowadays, in most countries, nurses teach and coach IC to patients. During the presentation, the history and definition of IC are discussed, as well as describing various ways of teaching IC to children. This session is aimed at both healthcare professionals and patient groups.

This webinar was presented  by Hanny Cobussen-Boekhorst (PhD, MANP, RN), a nurse practitioner and urotherapist specialising in continence and stomacare in the Division of Paediatric Urology in Radboudumc in Nijmegen, The Netherlands.

 

Webinar 10: Newborn management of ARM in male patients [GoToWebinar] [YouTube] by Prof. Paola Midrio and Prof. Ivo de Blaauw (20 October 2020)

This webinar is the second in a series covering all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations. Anorectal malformations (ARM) are rare congenital anomalies treated by paediatric surgeons with different levels of experience. Experience is often limited by the small number of cases per surgeon. This interactive webinar systematically discussed the newborn management of male patients. This included the demonstration of clinical cases, explanation of the international classification of ARM (Krickenbeck), the preoperative workup and surgical management of male newborn patients.

This webinar was presented by Prof. Paola Midrio from Cà Foncello Hospital, Treviso, Italy and Prof. Ivo de Blaauw from Radboudumc, Nijmegen in the Netherlands.

 

Webinar 9: Female Incontinence: From diagnosis to treatment in complex cases [GoToWebinar] [YouTube] by Frank Van der Aa (15 September 2020)

The diagnosis and treatment of complex female incontinence are challenging. This condition is mainly treated in expert centres where pooled experience exists. Solid evidence is non-existent in this field. This presentation covered some of the ways that these complex cases are approached in his centre along with discussion around current treatment algorithms.

This webinar was presented by Frank Van der Aa (MD, PhD) from University Hospital Leuven in Belgium, a specialist in female & functional urology and reconstructive urology. He is also the eUROGEN education lead for our functional urology workstream.

 

Webinar 8: Paediatric Colorectal Surgery: An introduction to eUROGEN ARM Webinars [GoToWebinar] [YouTube] by Prof. Ivo de Blaauw and Ms. Dalia Aminoff (21 July 2020)

This webinar is the first in a series covering all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations. In the webinar, the relevance of eUROGEN, ARMnet and other international networks was introduced and explained, and future topics for webinars was discussed.

This webinar was presented by Prof. Ivo de Blaauw, a paediatric surgeon at Radboudumc in Nijmegen, and Ms. Dalia Aminoff, the eUROGEN patient group representative for paediatric surgery. Prof. de Blaauw is also the eUROGEN Disease Area Coordinator for urorectal/anorectal malformations.

 

Webinar 7: Reconstructive surgery in females of vesicovaginal fistulae, vaginal mass, and urethral diverticulae [GoToWebinar] [YouTube] by Dr. John Heesakkers (16 June 2020)

A practical webinar focusing on rare functional urological diseases and complications:
– Firstly the general principles of assessment of vesicovaginal fistulae is explained
– The second case is the vaginal excision of a huge vaginal mass with a good functional outcome afterwards
– The third case is the workup of a urethral diverticulum with a surgical video as an example (which can be found as a separate video [GoToWebinar] [YouTube])

This webinar was presented by Dr. John Heesakkers, Urologist at Radboudumc in Nijmegen, and eUROGEN Disease Area Coordinator for complicated & complex pelvic floor disorders.

 

Webinar 6: Adrenal incidentaloma: to biopsy or not? [GoToWebinar] [YouTube] by Mr. Hans Langenhuijsen (12 May 2020)

Adrenal incidentalomas are found in up to 10% of CT scans that are made for non-adrenal indications. The goal of this webinar is to illuminate the basic knowledge about adrenal diseases for urologists and the appropriate diagnostic work-up. What should be the steps upon finding an adrenal incidentaloma? The importance of a multidisciplinary approach in evaluating the endocrine activity and the radiological characteristics are shown. The indications for surgery are assessed and for follow-up when surgery is not indicated. The specific role of biopsy for inconclusive adrenal tumours on imaging is discussed.

This webinar was presented by Mr. Hans Langenhuijsen, Urologist at Rabdoudumc in Nijmegen, and eUROGEN Disease Area Coordinator for adrenal tumours.

 

Webinar 5: Complex urethral reconstruction in males with case presentations [GoToWebinar] by Prof. Margit Fisch & Dr. Tim Ludwig (14 April 2020)

An overview of current concepts for the treatment of urethral stricture disease, including the presentation and discussion of three cases of complex strictures. This webinar was presented by Prof. Margit Fisch and Dr. Tim Ludwig from Universitätsklinikum Hamburg-Eppendorf, and was aimed at healthcare professionals.

 

Webinar 4: Proximal hypospadias [GoToWebinar] [YouTube] by Prof. Magdalena Fossum (10 March 2020)

An update on incidence, aetiology and long-term follow-up reports. Important surgical considerations and techniques that are appropriate when dealing with proximal hypospadias are presented.

This webinar was presented by Magdalena Fossum, Professor of Paediatric Surgery at Rigshospitalet, Copenhagen in Denmark. Within eUROGEN, Prof. Fossum is the research lead for the workstream dealing with rare congenital uro-recto-genital anomalies, as well as being the disease-area coordinator for posterior hypospadias.

 

Webinar 3: Fertility preservation following testis cancer [GoToWebinar] [YouTube] by Mr. Hussain Alnajjar (25 February 2020)

An insight into how to maximise the fertility potential and preserve patients’ fertility reserve when diagnosed with testicular cancer.

This webinar was presented by Mr. Hussain Alnajjar (BSc(MedSci), MCh(Urol), FRCS(Urol), FEBU), Consultant Urological Surgeon and Andrologist at University College London Hospitals.

 

Webinar 2: Late Effects of Penile Cancer – Lymphoedema [GoToWebinar] [YouTube] by Mr. Benjamin Ayres (12 November 2019)

Penile cancer is one of the rare urogenital cancers. It may have a significant impact on the physical and psychological well-being of affected males. The extent of lymph node involvement is an important prognostic factor and effective management of regional lymph nodes is key to patient survival. Surgical excision of the affected lymph nodes is often necessary and can be associated with significant morbidity in the long term, causing retention of lymphatic fluid in the subcutaneous tissues of the genital organs and the lower limbs. Genital and lower limb lymphoedema can be debilitating and difficult to manage. This webinar gives an overview of the current state of lymphadenectomy in penile cancer and discusses the long-term management of lymphoedema.

This webinar was presented by Benjamin Ayres, consultant urological surgeon from St. George’s Hospital in the UK. He was the ERN eUROGEN disease-area coordinator for penile cancer until Brexit.