Latest News Newsletters Upcoming Events Scientific Publications External Media Social Media Latest News Shaping the Future: Towards an EU Action Plan on Rare Diseases24 April 2025 0 DeCODe Workshop: Advancing Paediatric Device Development24 April 2025 0 Patient Empowerment: A Journey from Isolation to Advocacy4 April 2025 0 Rare Barometer Survey: Impact of Rare Uro-Recto-Genital Diseases27 March 2025 0 Session on Rare and Complex Urology at EAU2527 March 2025 0 ERN eUROGEN Book – Rare & Complex Urology22 March 2025 0 Expert Meeting on Vaginal Replacement in ARM17 March 2025 6 Celebrating Rare Disease Day 202528 February 2025 6 World Orphan Drug Congress Europe, 27-29 October13 February 2025 6 Previous1...45678...33Next