Latest News Newsletters Upcoming Events Scientific Publications External Media Social Media Latest News Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget6 November 2025 0 New ERN eUROGEN Overview Video: Accessing Expertise Across Europe30 October 2025 0 ERN eUROGEN at the ESSIC – CONVPP Congress, 202530 October 2025 0 Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action30 October 2025 0 Shaping the Future of Rare Disease Policy Together at ECRD 202630 October 2025 0 Updated ERN eUROGEN Resources for Anorectal Malformations25 September 2025 0 Urology Week 2025: UTIs in Rare and Complex Urogenital Conditions22 September 2025 0 Hans Langenhuijsen Appointed Professor of Adrenal Surgery12 September 2025 0 ERN eUROGEN Featured in the Journal of Pediatric Urology8 September 2025 0 Previous1...23456...33Next