Latest News Newsletters Upcoming Events Scientific Publications External Media Social Media Latest News The EC & ERNs: Providing Specialised Support to Ukraine20 February 2024 0 New Patient Information: Duplex Congenital Malformations of the UT6 February 2024 0 IRDiRC Publication on Drug Repurposing for Rare Diseases19 January 2024 1 Announced: 30th International Conference on Spina Bifida19 January 2024 0 WHO Global Network for Rare Diseases Workshop, December 202312 January 2024 0 EJP RD: Training on Real-World Data in Rare Diseases11 January 2024 0 EJP RD: Training on Undiagnosed Rare Disease Cases12 December 2023 0 EURORDIS ePAG Steering Committee Meeting 202311 December 2023 0 Change To ERN Data Monitoring Collection for 202411 December 2023 0 Previous1...910111213...33Next
