News

The Publications Office of the EU has published the newest edition of the official information brochure about the European...

A European Reference Network (ERN) Coordinators Group (CG) meeting was held in Luxembourg on 23 October, followed by a...

A Conference on Rare Diseases and the European Reference Networks was held on 10-11 October 2023 in the beautiful...

The commentary ‘IRDiRC Drug Repurposing Guidebook: making better use of existing drugs to tackle rare diseases’ has been published...

The ERN eUROGEN annual Strategic Board Meeting was held in Nijmegen-Lent (NL) from 11-12 September 2023, with attendees representing...

ERN eUROGEN joined the first meeting of the new EURORDIS Mental Health & Wellbeing Partnership Network which was launched...

Two free Massive Open Online Courses (MOOCs) for individuals with a keen interest in rare diseases research are currently available...

ERN eUROGEN has produced the video below (in cooperation with Erasmus MC and funded by the European Union) to...

ERN eUROGEN has co-signed an open letter in which the ERN Network Coordinators and people living with a rare...

ERN eUROGEN has produced the video below explaining the concept of the ERN eUROGEN registry for patients. We hope this...