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Results: ERN eUROGEN Five-Year Evaluation
16 November 2023ERN eUROGEN and its HCP members who took part in the recent Five-Year Evaluation have all now received their...
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Conference on Rare Diseases and the ERNs: Patient View
16 November 2023For the recent Conference on Rare Diseases and the European Reference Networks, ERN eUROGEN agreed to reimburse the attendance...
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Webinar Series for Ukraine: Spinal Dysraphisms
9 November 2023On Thursday, 16 November, in collaboration with OMNI-NET Ukraine and the International Federation for Spina Bifida and Hydrocephalus (IFSBH),...
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ERN Information Brochure: New Edition for 2023
31 October 2023The Publications Office of the EU has published the newest edition of the official information brochure about the European...
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ERN CG and BoMS Meetings, Luxembourg, October 2023
30 October 2023A European Reference Network (ERN) Coordinators Group (CG) meeting was held in Luxembourg on 23 October, followed by a...
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Conference on Rare Diseases and the European Reference Networks
24 October 2023A Conference on Rare Diseases and the European Reference Networks was held on 10-11 October 2023 in the beautiful...
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IRDiRC Task Force Publishes Drug Repurposing Guidebook
24 October 2023The commentary ‘IRDiRC Drug Repurposing Guidebook: making better use of existing drugs to tackle rare diseases’ has been published...
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Report: ERN eUROGEN Strategic Board Meeting 2023
12 October 2023The ERN eUROGEN annual Strategic Board Meeting was held in Nijmegen-Lent (NL) from 11-12 September 2023, with attendees representing...
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World Mental Health Day 2023: Actions for Rare Diseases
10 October 2023ERN eUROGEN joined the first meeting of the new EURORDIS Mental Health & Wellbeing Partnership Network which was launched...
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EJP RD: Free Online Courses on Rare Diseases
9 October 2023Two free Massive Open Online Courses (MOOCs) for individuals with a keen interest in rare diseases research are currently available...
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