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Webinar Emphasises Importance of ERN eUROGEN Registry
11 December 2023Another very successful ERN eUROGEN webinar (kindly supported by the European Society for Pediatric Urology) took place on 6...
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Clinical Practice Guideline: Diagnosis and Treatment of ARM
4 December 2023An ERN eUROGEN Expert Working Group has been adapting existing Dutch guidelines on anorectal malformations (ARM). We are happy...
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EURORDIS Patient Partnership Framework for the ERNs
4 December 2023EURORDIS has introduced the Patient Partnership Framework for the European Reference Networks (ERNs). This innovative guide is crafted to...
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Rare Disease Day 2024: Countdown Begins
4 December 2023The countdown is underway for Rare Disease Day 2024, an annual event organized by EURORDIS on the last day...
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ERICA & EJP RD Joint Conference: Future of Research
22 November 2023The ERICA & EJP RD Joint Conference was held in Amsterdam (NL) on 21 November. Wout Feitz (ERN eUROGEN...
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An Urge To Act: EU Continence Health Summit
17 November 2023On 8 November, ERN eUROGEN joined the EAU and 21 other scientific, professional, patient and non-profit organisations (including ICS, IUGA,...
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I-DSD Postgraduate Course & Symposium 2024: Stockholm
16 November 2023The second I-DSD Postgraduate Course will be held from 24-26 June 2024 in Stockholm. All healthcare providers and researchers...
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Results: ERN eUROGEN Five-Year Evaluation
16 November 2023ERN eUROGEN and its HCP members who took part in the recent Five-Year Evaluation have all now received their...
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Conference on Rare Diseases and the ERNs: Patient View
16 November 2023For the recent Conference on Rare Diseases and the European Reference Networks, ERN eUROGEN agreed to reimburse the attendance...
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Webinar Series for Ukraine: Spinal Dysraphisms
9 November 2023On Thursday, 16 November, in collaboration with OMNI-NET Ukraine and the International Federation for Spina Bifida and Hydrocephalus (IFSBH),...
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