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New Version of Clinical Patient Management System Released
14 June 2024The new desktop version of the Clinical Patient Management System, CPMS 2.0, was released on 31 May 2024, with...
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Patient Involvement in Guidelines Development Handbook
12 June 2024An ERN Guideline Programme handbook on “Patients’ involvement in the development of Clinical Practice Guidelines (CPGs) and Clinical Decision...
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Patient Information: Congenital Malformations of the Urinary Tract
12 June 2024We are pleased to announce that the following patient information materials on Duplex Congenital Malformations of the Urinary Tract...
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ERN eUROGEN at the European Association of Urology Congress 2024
26 April 2024The ERN eUROGEN Coordination team was honoured to participate in the prestigious annual European Association of Urology congress, held...
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ERN eUROGEN Patient Journey for Anorectal Malformation
28 March 2024We are delighted to announce the publication of a new version of the ERN eUROGEN Patient Journey for Anorectal...
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ERN eUROGEN Book Launched on Rare Disease Day 2024
29 February 2024On Rare Disease Day 2024, ERN eUROGEN, the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions,...
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Rare Disease Day 2024: The Vital Role of ERNs
29 February 2024Rare Disease Day 2024 marks a significant milestone for ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases...
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The EC & ERNs: Providing Specialised Support to Ukraine
20 February 2024It is estimated that there are more than two million Ukrainian patients with a rare or complex disease. To...
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New Patient Information: Duplex Congenital Malformations of the UT
6 February 2024We are delighted to announce a significant advancement in patient education and support in the realm of urological health....
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IRDiRC Publication on Drug Repurposing for Rare Diseases
19 January 2024The latest IRDiRC paper, “Drug Repurposing for Rare: Progress and Opportunities for the Rare Disease Community” has been published...
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