News

The 20th meeting of the ERN 24 Coordinators with the European Commission’s DG SANTE team was held in person...

Due to Prof. Wout Feitz’s retirement on 8 May 2024, it became necessary to identify a new Coordinator for...

The new desktop version of the Clinical Patient Management System, CPMS 2.0, was released on 31 May 2024, with...

An ERN Guideline Programme handbook on “Patients’ involvement in the development of Clinical Practice Guidelines (CPGs) and Clinical Decision...

We are pleased to announce that the following patient information materials on Duplex Congenital Malformations of the Urinary Tract...

The ERN eUROGEN Coordination team was honoured to participate in the prestigious annual European Association of Urology congress, held...

We are delighted to announce the publication of a new version of the ERN eUROGEN Patient Journey for Anorectal...

On Rare Disease Day 2024, ERN eUROGEN, the European Reference Network (ERN) for rare uro-recto-genital diseases and complex conditions,...

Rare Disease Day 2024 marks a significant milestone for ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases...

It is estimated that there are more than two million Ukrainian patients with a rare or complex disease. To...