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Poster accepted for European Conference on Rare Diseases & Orphan Products
21 April 2020The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event. ECRD 2020...
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ERN Expansion Postponed due to COVID-19 Crisis
21 April 2020The call for new members to apply to the existing European Reference Networks was opened in 2019 and the...
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Complex urethral reconstruction in males with case presentations
3 April 2020On Tuesday the 14th April at 18:00 CEST, we will be continuing our series of eUROGEN webinars with a...
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Brexit: Withdrawal Agreement and ERNs
5 March 2020The Withdrawal Agreement as agreed between the parties in October 2019 entered into force on 1 February 2020, with...
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Clinical Guidelines – Spanish Consortium to Help ERNs Deliver
5 March 2020In a meeting held in Brussels on 6 February 2020, the European Commission (EC) introduced a new project to...
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World Rare Disease Day – 29 February
5 March 2020Patients, healthcare providers, charities, representation groups and more collaborated to raise awareness of rare diseases on Saturday 29...
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Establishing the ERN eUROGEN Patient Registry
5 March 2020The eUROGEN Coordination Team are actively working with the European Commission to agree the Grant Agreement to set up...
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ERN eUROGEN Enlargement – 31 New Applications
5 March 2020In the call opened by the EC in 2019, ERN eUROGEN received a total of 31 new applications to...
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eUROGEN Webinar: Fertility preservation following testis cancer
19 February 2020On Tuesday the 25th February at 18:00 CET, we will be continuing our series of eUROGEN webinars with a...
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New Commissioner for Health and Food Safety
18 December 2019Stella Kyriakides was immediately appointed as the new Commissioner for Health and Food Safety (taking over from Vytenis Andriukaitis)...
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