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IRDIRC Orphan Drug Development Guidebook
4 June 2020The commentary ‘Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook’ has been published in Nature...
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COVID-19 Paediatric Clinical Research: Dosing Recommendations
4 June 2020The European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) Coordinating Group has issued a statement to...
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EC COVID-19 Webinar Series: Kidney and Rare Diseases
4 June 2020In the context of COVID-19 pandemic and within the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a...
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Budget for Recovery: EC Proposes €9.4 billion EU4Health Programme
4 June 2020The Commission has proposed a new, ambitious stand-alone health programme for the 2021-2027 period – the EU4Health Programme. EU4Health...
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Integration Strategy for Affiliated Partners: Active Engagement and Participation
1 June 2020Each ERN, including eUROGEN, has developed an integration strategy for the active engagement and participation of Affiliated Partners, giving...
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New Calls for Tender for ERNs
22 April 2020ERNs Capacity and Knowledge Sharing Through Short Term Mobility and Exchanges of Healthcare Professionals Deadline: 11 May 2020 The...
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EAU COVID-19 Rapid Reaction Recommendations
22 April 2020In light of the COVID-19 situation, the European Association of Urology (EAU) Guidelines Office has set up a Rapid Reaction Group (GORRG)...
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Poster accepted for European Conference on Rare Diseases & Orphan Products
21 April 2020The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event. ECRD 2020...
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ERN Expansion Postponed due to COVID-19 Crisis
21 April 2020The call for new members to apply to the existing European Reference Networks was opened in 2019 and the...
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Brexit: Withdrawal Agreement and ERNs
5 March 2020The Withdrawal Agreement as agreed between the parties in October 2019 entered into force on 1 February 2020, with...