The ERN eUROGEN platform will be built on the collection of core data set elements and domain-specific elements, combined with data from existing registries for specific rare uro-recto-genital diseases. Thus the registry will comprise the following sets of data: The data in the ERN eUROGEN Registry will be made Findable, Accessible, Interoperable, and Reusable for humans and computers (i.e., FAIR). To achieve this, ERN eUROGEN will work with Bruna Dos Santos Vieira, “FAIRification” Steward, European Joint Program on Rare Diseases (EJP-RD). During the project period, the HCPs will add their cases while existing disease-specific registries will undergo a process of FAIRification to allow integration with ERN eUROGEN using the Common Data Elements. In the future, other national registries will be considered, and a patient portal will be created for surveys, e.g., on quality of lifeDatasets