Affiliated Partners

Affiliated Partners

In 2019 the Board of Member States for ERNs (BoMS), which is mostly comprised of representatives from the health ministries of the Member States, began the process of designating institutions in their countries as Affiliated Partners to work with ERNs.

There are two types of Affiliated Partner: Associated National Centres and Coordination Hubs.

eUROGEN will be working proactively with the Affiliated Partners to train them on how to use CPMS, because a priority objective for our network is to transfer knowledge and offer as much help and advice as possible to healthcare professionals in countries which do not see rare and complex cases very often due to their smaller population sizes. Furthermore, all eUROGEN educational and training opportunities will be open to Affiliated Partners.

A memorandum of agreement is signed between them and the eUROGEN Strategic Board which ensures that they actively implement agreed clinical guidelines, with support via European MDTs as necessary and participate in them as observers for learning purposes; register data in common registries; and participate in clinical trials. eUROGEN will consider including Affiliated Partners in EU research and other proposals depending on their capacity.

The 24 ERN Coordinators who meet twice a year have developed a Strategy for the Integration of Affiliated Partners to identify some common principles and this document can be found here.

ERNs are also required to develop an individual Strategy for the Integration of the Affiliated Partners which are shared with the Board of Member States representatives for ERNs. eUROGEN’s strategy can be found here.