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External Media

We disseminate and communicate information about ERN eUROGEN and its activities in external media sources such as the newsletters, blogs, and websites of scientific associations, patient organisations, and other rare disease stakeholders. You can find a list of articles about ERN eUROGEN below, grouped by publication date.

2025

JARDIN Newsletter No. 3 – ERN eUROGEN: New ORPHAcodes, expert events and patient empowerment (3 October 2025)
Radboudumc News Items – Hans Langenhuijsen appointed as Professor of Adrenal Surgery (8 September 2025)
OrphaNews – Updated Orphanet classification of spinal dysraphisms published (8 August 2025)
IFSBH Website – Creating Collaboration through the Clinical Patient Management System (6 March 2025)
IFSBH Website – New paediatric urological guidelines for children and adolescents with Spina Bifida (12 February 2025)
Amsterdam UMC Spotlight – Working together against rare diseases (8 January 2025)

2024

OrphaNews – Cross-ERN online paediatric colorectal course (19 December 2024)
OrphaNews – Recap of the cross-ERN workshop on spina bifida & other dysraphisms (19 December 2024)
OrphaNews – New ERN eUROGEN brochure for patients and families with ARM (19 December 2024)
SoMAGAZIN – Auf der Zielgeraden: Patient Journey und ARM Guidelines (August 2024, p26-28)
ERN eUROGEN: A new book on rare and complex urology, plus a summary of EAU24 activities (EUT, June/July 2024, p74)
International Painful Bladder Foundation (IPBF) e-Newsletter (Issue 67, June 2024) (Including: Conference review: EAU 2024, ERN eUROGEN webinar ketamine-induced uropathy, Book review: ERN eUROGEN Rare and Complex Urology)
Elsevier Connect – Why rare diseases are posing a massive societal challenge (26 February 2024)

2023

SoMAGAZIN – Netzwerken und Leitlinien (December 2023, p27-29)
OMNI-Net Bulletin (October 2023, p6)
Associazione Italiana Cistite Interstiziale (AICI) Brochure (September 2023)
EURORDIS Rare on Air podcast (September 2023)
ERN eUROGEN: Application for 2023-2027 funding submitted (EUT, Aug/Sep 2023, p30)
Rare diseases: European evaluation report gives Radboud university medical center high scores (Radboudumc intranet, September 2023)
Patiëntenvereniging voor Blaasextrofie Nederland Newsletter – Blaasextrofie, En Dan? (August 2023)
SoMAGAZIN – Zentralisierung in der Fehlbildungs-Chirurgie: Wo stehen wir, wie kommen wir weiter? (August 2023, p16-20)
SoMAGAZIN – CureforU (August 2023, p27)
Sexual Support: Anorectal Malformations & Hirschsprung’s Disease (May 2023, website)
Improving Outcomes in Patients with Complex Urology Conditions: The ERN eUROGEN Experience (May 2023)
Multiple Successes for Urological Rare Disease Network (EUT, Apr/May 2023, p25)
Clinic of Urology is European Reference Centre for the Treatment of Testicular Cancer (April 2023)
SoMAGAZIN – Aktuelles aus den europäischen Netzwerken (April 2023)
Podcast: Reconstructive Urology (interview with Yazan Rawashdeh, senior physician and urinary tract surgeon at Aarhus University Hospital, by Ugeskr Læger, April 2023).

2022

ERN eUROGEN Special Session at EAU22 (EUT Congress News, June/July 2022, p43)
ERN eUROGEN expands members: Renewed funding and other exciting updates planned for 2022 (EUT, Mar/May 2022, p29)

2021

ERN eUROGEN Exchange: Successful Visits in the Netherlands and Italy (EUT, Oct 2021, p6)
ERN eUROGEN: Update from the Network for Rare Urology (EUT, Aug/Sep 2021, p6)
SoMAGAZIN Aug 2021, p6-7, p16-17, & p19
ERN eUROGEN: An update on rare and complex urology (EUT: EAU21 Congress Edition, p28)
ERN eUROGEN update (EUT, Mar/May 2021, p8)
The ERICA project: ERNs joining forces on research and innovation (EUT, Jan/Feb 2021, p6)

2020

ERN eUROGEN: Late effects of Penile Cancer (EUT, Oct/Dec 2020, p6)
ERN eUROGEN to double membership after new call for applicants (EUT, Oct/Dec 2020, p5)
eUROGEN and ESSIC work together against interstitial cystitis (EUT, Jan/Feb 2020, p30)

2019

Opportunity to join for hospitals in smaller EU countries (EUT, Oct/Dec 2019, p17)
2019 Call for Membership to existing European Reference Networks (ERNs) open soon (EAU, 31 Jul 2019)
How ERNs provided an innovative way to treat complex female urogenital tract abnormalities (Genetic Alliance, 29 May 2019)
Strategy of eUROGEN to integrate its Affiliated Partners (EC Newsroom, 12 May 2019)
Guidelines updates and advocacy groups in Pca, Bca and RCC (EAU, 22 Mar 2019)
Inside EAU: eUROGEN (EAU, 20 March 2019)
Digital technologies will change the future of healthcare (EUT Congress News, 17 Mar 2019, p5)
eUROGEN ERN: Opportunities to join in 2019 (EAU19 Report, 16 Mar 2019, p2)
eUROGEN ERN: Removing barriers in cross-border care and research (EAU, 16 Mar 2019)
A “CPMS newsletter” to keep healthcare professionals informed about the latest developments: an initiative of eUROGEN (EC Newsroom, 7 Mar 2019)

2018

eUROGEN: Improving lives for patients with rare diseases (EUT Congress News, 20 Mar 2018, p1)
eUROGEN: Improving lives for patients with rare diseases (EAU, 18 Mar 2018)
EU Health Commissioner Andriukaitis urges stronger collaboration (EAU, 16 Mar 2018)
New Clinical Patient Management System goes live for ERNs (EUT, Jan/Feb 2018, p26)

2017

Taking the next steps in cross border urological care (EUT, 19 Sep 2017, p1)
eUROGEN is approved by the European Commission (EAU, 5 Apr 2017)
European Reference Networks: 900 medical teams to connect across Europe for the benefit of patients (EAU, 1 Mar 2017)
Sheffield Hospitals to lead new virtual surgical centre of expertise (STH News, 28 Feb 2017)

2016

Update on European Reference Networks (ERNs) (EAU, 26 Sep 2016)
Towards a Urological European Reference Network: Share, Care and Cure (EAU, 5 Jan 2016)

Funded by the European Union

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